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The NDIS is being rorted, but not by autistic people like me

By bobb |

Elena Filipczyk Autistic writer

It took me two years after my formal autism diagnosis to build up the courage to ask my kind, empathetic GP to help me access the National Disability Insurance Scheme (NDIS). I was mortified, but most of all, I felt like an impostor.

As my GP smiled warmly and took the paperwork off me, she admitted she’d never filled in an NDIS form before. I looked down at my feet and dug my nails into my palms. Was I wasting her time? Was I wasting government money?

Autistic drivers could find their licences in legal limbo depending on where they live after new standards introduced

By bobb |

Danielle Cahill

Thousands of autistic drivers could find their Australian licences are in legal limbo due to changes quietly made last year to the national standards that govern who is considered fit to drive.

The national 2022 Assessing Fitness to Drive standards are the first to list autism as a condition that "should be assessed individually", which may involve a practical assessment.

NDIA used the law to ‘exhaust’ participants

By bobb |

Rick Morton

A leaked review document shows the National Disability Insurance Agency used ‘legalistic brinkmanship’ to force disabled people to ‘bargain away their rights’.

A backlog of thousands of National Disability Insurance Scheme tribunal appeals was almost entirely artificial, not based on proper legislative interpretation and driven instead by “external pressures” to rein in costs of the scheme, according to independent reviewers chosen to work through the stricken cases.

Why do some children lose their autism diagnosis?

By bobb |
A study published 2 October in JAMA Pediatrics reports that 79 of 213 children who were diagnosed with autism at 12 to 36 months of age no longer met criteria for the condition at 5 to 7 years old. Spectrum asked autism researcher Deborah Fein, Board of Trustees Distinguished Professor Emeritus of Psychological Sciences at the University of Connecticut in Storrs, for her thoughts on the findings. In a 2013 study, Fein and her colleagues described a sample of people who lost their autism diagnosis.

‘Quick and dirty’ NDIS review faces backlash from disability advocates

By bobb |

Stephen Lunn

A “quick and dirty” review of the $35bn-a-year National Disability ­Insurance Scheme will not ­address its longstanding problems in time to meet national cabinet’s hard cost-control targets set for three years from now, advocates have warned, signalling a fresh battle over its future.

Bloated NDIS encourages providers to keep children in care: experts

By bobb |

Tom Burton

Governments need to stop encouraging private providers to find repeat customers in the care sector and make a paradigm shift to a model that builds in support across the disability, aged care and rehabilitation sectors, social policy experts say.

A new paper from the Actuaries Institute said care economy models that sought to create a private marketplace of services which governments fund, meant there was little incentive to get people off publicly funded support.

There's still time to have your say in the NDIS Review

By convenor |

Closed 15/9/2023

Later inputs (until 23/10/2023) will inform the National Autism Strategy.

We recognise that there are many things that compete for your time so if you wanted to have a say you still can. If you have had a say but realised you wanted to add something more than please do so.

This survey uses a 0-10 scale and if you want to add free text you can. You can answer one topic or many. It is up to you. The survey is available at: