The following list shows A4's recent advocacy. This list contains both publications (including briefs and submissions) and communications (letters & emails).

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letter: mad bureaucracy in the NDIA

By bobb |

Dear Minister Andrews MP

I am writing to you about the mad bureaucracy in the NDIA, particularly in relation to the funding of transport associated with disability services.

In many instances, a disability service is either provided in a person's home or requires transport in order that a person can access the service. If the cost of transport is not included, then the service is simply not financially viable.

Workforce issues relating to autism spectrum disorder, early intervention and the NDIS

By bobb |

Introduction

The latest NDIS Quarterly Report (up to 31/3/2014) [MS Word or PDF] shows that more NDIS participants (24%) have autism spectrum disorder (ASD) than any other distinct disability type. There was a sudden increase from the previous two quarterly reports that showed no NDIS participants with “autism” at all (previously, we assume the NDIS hid participants with ASD in other categories, such as “intellectual disability” or “neurological disorder”).

Australian Governments largely ignore the simple fact that generic disability services, often called specialist disability services, do not meet the disability service and support needs of people with ASD. The ABS reported the dire outcomes for people with ASD experience in Australia: see http://www.abs.gov.au/ausstats/abs@.nsf/mf/4428.0. The consequences of neglecting their specific needs is that people with ASD experience abysmal outcomes in education, labour force participation and service access; people with ASD have appalling outcomes that are far worse than those reported for people with a disability generally.

contact NDIS about functional assessment for ASD

By bobb |

Sent via the NDIS contact form (see http://www.ndis.gov.au/form/contact-form) on 30/5/2014

I see from various documents on the NDIS website that a person with autism spectrum disorder (ASD), as well as needing evidence of a formal diagnosis, also needs a "severity level" ... or the NDIS will make its own functional assessment to determine his severity level. As my son's diagnosis was done before there were severity levels associated with ASD diagnoses, I expect he will need an NDIS functional assessment to determine his severity level.

Please can you provide details of:

Really? ACT Government report on ASD given "fail" grade

By bobb |

A review of the ACT Government's latest report on services for people affected by autism spectrum disorder (ASD) gives the ACT Government a "fail".

Executive Summary

The Legislative Assembly asked the ACT Government to report on “support provided for autism diagnosis and services and the potential for further reforms”. The Minister presented the report to the Assembly in May 2013. Following numerous requests, the Minister gave a copy of the report to representative of people affected by autism spectrum disorder (ASD) on 23/4/2014. The Minister took 11 months to hand over a copy of the report to the ASD community in the ACT.

This review of that report finds that the ACT Government's information about ASD and the service and support needs of people affected by ASD is often incorrect. For example, the report under-estimates the number of Australian children diagnosed with ASD by an enormous factor of three (3).

NCID open letter to Assistant Minister for Social Services

By bobb |


An open letter to Senator The Hon Mitch Fifield, Assistant Minister for Social Services

Dear Minister Fifield

With respect, you cannot go on national radio (AM, Radio National 7 May 2014) and say to people with intellectual disability and their families that people with significant intellectual disability are unable to work in the open labour market (open employment).

This is factually wrong.

Minister's letter announces research into diagnostic practice for autism

By bobb |

Back in November 2013, Peter Hill wrote (see link below) to Senator Concetta Fierravanti-Wells, Parliamentary Secretary to the Minister for Social Services, asking about:

  • a meeting
  • the number of autism spectrum disorder (ASD) diagnoses (which are increasing significantly)
  • the cost of ASD to the community and steps that could/should be taken to minimise the burden on the community

assessed: the National Commission of Audit's disability related recommendations - fail

By bobb |

The National Commission of Audit today released it recommendations (see http://www.ncoa.gov.au/report/phase-one/recommendations.html). The recommendation relevant to disability follow, with a short commentary.

Recommendation 16: The National Disability Insurance Scheme

The National Disability Insurance Scheme is a worthy scheme with widespread community support. The Commission recommends the Commonwealth continue to support the introduction of the National Disability Insurance Scheme, but that the scheme be implemented in a way which is fiscally sustainable by:

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