A review of the ACT Government's latest report on services for people affected by autism spectrum disorder (ASD) gives the ACT Government a "fail".
Executive Summary
The Legislative Assembly asked the ACT Government to report on “support provided for autism diagnosis and services and the potential for further reforms”. The Minister presented the report to the Assembly in May 2013. Following numerous requests, the Minister gave a copy of the report to representative of people affected by autism spectrum disorder (ASD) on 23/4/2014. The Minister took 11 months to hand over a copy of the report to the ASD community in the ACT.
This review of that report finds that the ACT Government's information about ASD and the service and support needs of people affected by ASD is often incorrect. For example, the report under-estimates the number of Australian children diagnosed with ASD by an enormous factor of three (3).
A presentation (see this) at the International Meeting for Autism Research (IMFAR) 2014 shows from health insurance records (from USA) that people with autism spectrum disorder (ASD) have higher rates of some other health issues than do people without ASD.
An open letter to Senator The Hon Mitch Fifield, Assistant Minister for Social Services
Dear Minister Fifield
With respect, you cannot go on national radio (AM, Radio National 7 May 2014) and say to people with intellectual disability and their families that people with significant intellectual disability are unable to work in the open labour market (open employment).
Back in November 2013, Peter Hill wrote (see link below) to Senator Concetta Fierravanti-Wells, Parliamentary Secretary to the Minister for Social Services, asking about:
a meeting
the number of autism spectrum disorder (ASD) diagnoses (which are increasing significantly)
the cost of ASD to the community and steps that could/should be taken to minimise the burden on the community
Recommendation 16: The National Disability Insurance Scheme
The National Disability Insurance Scheme is a worthy scheme with widespread community support. The Commission recommends the Commonwealth continue to support the introduction of the National Disability Insurance Scheme, but that the scheme be implemented in a way which is fiscally sustainable by:
1 in 68 children were identified with autism spectrum disorder. Read more about CDC’s new data on autism spectrum disorder and learn what you can do to help.
The following raises concerns about the likely and imminent demise of crucial services for children with autism. I understand that the contracts for the Autism Advisers (funded as part of the Commonwealth Government's Helping Children with Autism package) in South Australia and in the Australian Capital Territory have not been renewed. As a result of the NDIS, the Autism Adviser service in these regions will cease soon unless those contracts are renewed.
The Government commissioned and released its reviews the capabilities of the National Disability Insurance Agency (NDIA), the agency responsible for the National Disability Insurance Scheme (NDIS). The report is available at http://www.ndis.gov.au/document/760