As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.
It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight.
Nicholas, 23, who has non-verbal autism, began spending all day lying on the couch and struggled to keep food down. A lump the "size of a 50 cent coin" appeared under his chin. Eventually, it became difficult for him to breathe.