'We almost lost him': Canberrans with special needs turned away from hospital

By convenor | Mon, 13/2/2017 - 07:19

Sherryn Groch

As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.

It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight. 

Nicholas, 23, who has non-verbal autism, began spending all day lying on the couch and struggled to keep food down. A lump the "size of a 50 cent coin" appeared under his chin. Eventually, it became difficult for him to breathe.

Urgent need for cause of death reporting system for Australians with intellectual disability

By bobb | Thu, 9/2/2017 - 17:11

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

A total of 732 Australian adults with an intellectual disability died in NSW over six years, many from causes or conditions that could have been avoided with more appropriate health care and monitoring.

NDIS: Federal Government announces independent review of National Disability Insurance Scheme

By bobb | Sat, 21/1/2017 - 06:30

Henry Belot

The Federal Government has announced an independent review of the National Disability Insurance Scheme (NDIS) to examine overall costs, value for money and its long-term sustainability.

Treasurer Scott Morrison announced the Productivity Commission review on Friday afternoon with a position paper to be released in May, followed by a report in September.

How to dispute a Centrelink debt

By bobb | Wed, 28/12/2016 - 08:31

A4 editor: The following is not specifically about autism or disability ... it is here to help/inform any autistic adults who are having issues with Centrelink's cruel new system for scamming/fabricating debts from the most vulnerable.

Sally Whyte, Journalist

Does Centrelink think you owe money that you don't think you owe? Here is what to do next.

Centrelink’s new automatic debt generation computer system is generating 20,000 debt notices a week, despite more and more stories emerging about obvious problems with the system.

incredible numbers of 'school students with disability'

By bobb | Thu, 22/12/2016 - 13:32

Bob Buckley

Recently, the Education Council released its first report based on data collected for the Nationally Consistent Collection of Data: School Students with Disability.

The report describes 18% of school students as having disability. This rate of disability among school students in the major states (see Table 3 in the report) aligns remarkably closely with the average disability rate (18%) in the Australian population. But this level of disability is far more students than other reports of children with disability.

A4's submission to DSS on employment services

By convenor | Fri, 16/12/2016 - 18:00

A4 provided the submission below in response to the DSS Discussion Paper (see https://engage.dss.gov.au/disability-em…). A4's submission starts out saying:

The opening sentence of the Minister’s Foreword to the discussion paper says:

The Australian Government is committed to improving employment outcomes for people with disability and getting more people with disability into jobs.

The controversy over autism’s most common therapy

By bobb | Sun, 11/12/2016 - 16:55

Applied behavioral analysis is the most widely used therapy for autism, but some people say its drills and routines are cruel, and its aims misguided.

BY ELIZABETH DEVITA-RAEBURN

When Lisa Quinones-Fontanez’s son Norrin was diagnosed with autism at age 2, she and her husband did what most parents in their position do — they scrambled to form a plan to help their child.