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Understanding the challenges of disability care

By bobb |

Wendy and Henry Ponsen with their son Jonathan.

By Robert Virtue (with Diane McCracken)

For 32 years, Wendy and Henry Ponsen have been dealing with the challenges of caring for a child with a disability.

The Ponsen family of Newcastle are up-front about the difficulties in raising a child with a disability.

Wendy and Henry have been caring for their six-foot tall, 32 year-old son Jonathan for all his life.

There've been ups and downs and a myriad of challenges along the way.

unacceptable political games over early intervention for children with disability

By bobb |

Federal and state Ministers are playing politics to delay reasonable and necessary early intervention services for children with disability.

The NDIA was advised from the outset that their estimates of the number of people with autism spectrum disorders (ASD) was seriously wrong (see /node/425 and the footnote on /node/695). 

NDIS funding model ‘fails autistic children’

By bobb |

Sarah Martin, Political Reporter

Jedd (3) with behaviour therapist Stephanie Miller at the AEIOU Foundation, Huntfield Heights Centre

Jedd (3) with behaviour therapist Stephanie Miller at the AEIOU Foundation, Huntfield Heights Centre.Source: News Corp Australia

SEVERELY autistic children are receiving less funding in trials of the National Disability Insurance Scheme than they were under previous funding arrangements.

Early intervention service provider the AEIOU Foundation, which set up in South Australia to test its viability under trials of the new national disability funding model, says it cannot operate effectively under the scheme.

AEIOU chief executive Alan Smith said it was able to provide only five days a fortnight of intensive therapy under the NDIS, compared with 10 days where the scheme was not yet in effect, in Queensland.

Programs for the 0.1 per cent of children with autism disorder require about $45,000 for each child, but the NDIS has set a benchmark payment of $16,000.

Death of autistic boy at Kyneton a 'tragic accident', coroner rules

By bobb |

By Stephanie Corsetti

The death of a central Victorian autistic boy under Department of Human Services care was a tragic accident and not the result of a lack of care, a coroner has found.

Michael Patrick Ormsby, 9, died in 2010 when he ran away from his carer at Kyneton and was struck by a car.

In November 2009 DHS requested the child attend weekend respite care after the school week.

Michael Ormsby, the boy who died because we didn't do enough

By bobb |

Nine-year-old Michael Ormsby died while in state respite care. The Herald Sun's Ruth Lamperd investigates what went wrong.

BEFORE Michael Ormsby got into mischief, his big brown eyes would dob him in. They would start smiling and people knew he was up to something.

He'd wander off, out of sight, chuckling at his plans. Delighted at how clever he was.

He liked getting into strife almost as much as he loved oranges, the smell of eucalyptus and being king of the castle.

Behavioural method is not an attempt to ‘cure’ autism

By bobb |

Julie with Jack in a film about Applied Behaviour Analysis.

Treetops School in Essex is a state school that uses ABA (Applied Behaviour Analysis) to educate children with autism. ABA has generated controversy and BBC4’s film, Autism: Challenging Behaviour, follows three-year-old Jack and four-year-old Jeremiah in their first term at the school.

ABA isn’t actually an autism treatment, although it can be used to make a positive difference. It can be applied at any age and not just with children with more severe autism. It’s also used in other areas of education and in health, and among other things good parenting uses its principles. ABA has been used to improve safety, train elite athletes and to increase productivity at work.

Victoria state election: Labor promises help for students with autism and dyslexia

By bobb |

EXCLUSIVE

Children with dyslexia and autism could receive assistance at Victorian schools for the first time under an Andrews government, with Labor to announce it would review the controversial funding system.

A Labor government would introduce sweeping disability reforms after reports by the Victorian Equal Opportunity and Human Rights Commission and Auditor General revealed the education system was failing students with disabilities.

Labor will announce on Wednesday that if elected it would: