Show news for a region of your choice (mostly Austraian news).

NDIS rollout in Sydney: not perfect but at least it's here

By bobb |

Connie Vella had high expectations for the National Disability Insurance Scheme and what it would mean for her four-year-old daughter Hannah, who has bilateral hearing loss.

The Cranebrook woman went to her meeting with an NDIS planner earlier this year, well prepared with quotes from a range of hearing specialists and a list of the supports Hannah would require.

All up, the quotes came to $34,000 including early intervention services, speech pathology, language therapy, a school readiness program and hearing aids.

Mrs Vella was stunned when the planner returned with a package worth $12,000.

"It was a massive gap," she said. "We are supposed to be no worse off under the NDIS. We're a lot worse off. I'm a good advocate for Hannah but there are families out there who'll just accept what's on offer and that worries me for these children."

Fury as law firm boasts of 'great win' over parents of vulnerable children

By bobb |

from the United Kingdom

Baker Small apologises after series of tweets appeared to gloat at parents who failed to win funding of their children’s special needs provision

A law firm that specialises in contesting claims for children with special educational needs (SEN) has apologised after publishing a series of tweets that appeared to gloat at parents.

Screen all children for autism to combat 'devastating' diagnosis delays, says psychiatrist Valsamma Eapen

By bobb |

Belinda Hitchcock knew instinctively something was different with her baby.

Her placid son Bradley, who started talking when he was 18 months old, had regressed to incoherent babbling. By the time Bradley was two he had lost the ability to speak. 

His mother was fobbed off again and again by doctors as she desperately tried to find answers. 

Autism: Parents targeted by pseudo-medical charlatans with bogus treatments

By bobb |

Jane Hansen

PARENTS of autistic children are spending millions of dollars a year on bogus treatments in the hope of a miracle “cure”.

Now there are fears the National Disability Insurance Scheme will be ripped off by these charlatans, who are ­already preying on desperate parents.

Diane Verstappen from Aspire Early Intervention, an evidence-based program, said parents with self-managed funds from the NDIS would be a prime target.

Autism study shows early intervention helping children in regional areas

By convenor |

The centre behind an successful early intervention program for autistic children in Tasmania's north-west hopes to expand its services to other parts of the state.

University research has found children at the Autism Specific Early Learning and Care Centre in Burnie have experienced big improvements.

Data collected from 98 children over four years showed most had improved in behaviour, communication, language development and motor skills.

The centre has been running for the last six years and is the only regional autistic learning centre in Australia.

Pay school funds: NSW state Coalition

By bobb |

NATASHA BITA

State Education Minister ­Adrian Piccoli, a Nationals MP, said the federal government’s ­refusal to fully fund the Gonski ­reforms, worth $5 billion to NSW schools, was like stopping a new railway line midway through construction. “It’s like building a train line that costs $5bn and takes six years to build, but you stop building it halfway through,’’ he said.

“You’ve already spent $2bn or $3bn and no passengers have travelled on it.

Nonspeaking teen writes profound letter explaining autism

By bobb |

For the first 14 and a half years of Gordy's life, Evan and Dara Baylinson had no reason to believe their son could comprehend anything they said: He had never spoken, and he couldn't really emote. They worried aloud about his future, not filtering what they said, because they didn't think he understood.

But Gordy was absorbing everything.

"My brain, which is much like yours, knows what it wants and how to make that clear," he wrote in a letter he sent to a police officer. "My body, which is much like a drunken, almost six-foot toddler, resists."