NDIS: DRCO Forum 1 July

By convenor |

Subject: Fwd: DRCO Forum 1 July [SEC=OFFICIAL]
Date: Tue, 28 Jun 2022 16:14:28 +1000
From: Bob Buckley (A4 Convenor) <convenor@a4.org.au>
To: <XXX@ndis.gov.au>

Hi XXX

I notice that the Actions from the last DRCO Forum says you would contact "the Autism Alliance and any other interested organisations about the NDIA business system and Participant Portal". I am an interested party who raised stuff relating to this issue in the meeting. I have heard nothing more. Has anything happened?

Please involve the autism community in creating a National Autism Strategy

By convenor |

Subject: Please involve the autism community in creating a National Autism Strategy.
Date: Fri, 10 Jun 2022 13:31:52 +1000
From: Bob Buckley (A4 Convenor) <convenor@a4.org.au>
To: The Hon. Mr. Shorten MP <Bill.Shorten.MP@aph.gov.au>
CC: Senator Carol Brown <senator.carol.brown@aph.gov.au>, ...

Dear The Hon. Bill Shorten MP

RE: Escalating risks for people with disability from Omicron and access to RAT and PCR tests

By convenor |

Subject:RE: Escalating risks for people with disability from Omicron and access to RAT and PCR tests [SEC=UNOFFICIAL]
Date:Wed, 5 Jan 2022 21:52:49 +0000
From:Lowe, Jamie <Jamie.Lowe@ndis.gov.au>
To: ...
CC:...

Dear Bob

Thank you for drawing this to my attention. We endeavour to align all our messaging to Health messaging to avoid confusion and will immediately review our website and social media content to ensure that the information we provide is up-to-date and aligned to Health messaging.

ABC: debate over controversial treatment for autism

By convenor |

The report at https://www.abc.net.au/radio/adelaide/programs/worldtoday/debate-over-controversial-treatment-for-autism/13532176 is one-sided. It fails to speak to qualified or registered clinicians in Applied Behaviour Analysis. It is well known that any early intervention approach for autism does not suit all autistic children, but getting views from clinicians on one side of the debate is biased. 

creating trust in the NDIA is about more than the so-called Independent Assessments

By convenor |

Minister Reynolds has the NDIA and disability representatives working on rebuilding trust. The NDIA and some parts of the disability sector seem to think this is just about recent conduct.

For the autism sector, there are deeper issues from the outset.

Here is a letter from  A4 to the Minister briefly describing some of the history and issues.

NDIS FOI 21/22-0100 - misinformation and untruths

By convenor |

The NDIA did not respond to a number of A4's concerns. Issues of particular concern were:

  • "misinformation and untruths" from the NDIA's CEO to NDIS participants about the assessment tools that were planned for functional assessment of autistic NDIS participants for the so-called Independent Assessments, and
  • inexpert and misguided advice from the NDIA's Independent Advisory Council (IAC) about early intervention for autistic children.

The NDIA did not respond to A4 about its concerns.

Coalition government’s ongoing war on autistic Australians

By convenor |

Dear Senator the Hon Linda Reynolds,

Subject: Government’s ongoing war on autistic Australian

Autism Aspergers Advocacy Australia (A4) deplores media reports (see Annex below) saying that “The Minister responsible for the National Disability Insurance Scheme has blamed an uptick of Australia’s aged, autistic and obese people for the ‘unsustainable’ rising costs of the service”. Your government’s war on autism is unacceptable. We complained about it before and were ignored

Aged autistic people are one of the smallest subgroups in the NDIS: there were just 125 of them in June 2021, just 0.8% of 14K+ NDIS participants in that age group. While their funding level is higher than average for the NDIS, we doubt the numbers in this very small group will increase significantly for some time. We have not found NDIA reporting on obesity; we doubt the NDIS even has reliable data on obesity of NDIS participants.