The following list shows A4's recent advocacy. This list contains both publications (including briefs and submissions) and communications (letters & emails).

To find a (free) disability advocate to help you, try:

Government reply to letter about 2014 Budget and the DSP

By bobb |

A Government official (signature indecipherable), not the Assistant Minister, replied to A4's letter (see http://a4.org.au/a4/node/819) about Disability Support Pension and measures in the 2014-15 Federal Budget.

The Government's response is disappointing. It ignores the issues that A4 raised.

In its response the Government says that:

Submission to Review of Australia's Welfare

By bobb |

front coverA4 submitted the report below to the Australian Government's Review of Australia’s Welfare System.

A4's report highlights that ... 

  • people with autism want to work and are capable of working. The problem is that employers, including governments in Australia, simply do not employ people with autism,
  • describing people with disability as "leaners", or as "rorters, bludgers, slackers, etc." does not improve employment outcomes,
  • growth in Disability Support Pensions is not even as big as growth in autism diagnoses ... so there is no real welfare crisis, but growth in the number of people diagnosed with autism deserves much more attention, and
  • Australia's welfare compared to GDP is below average for the OECD so Australia's welfare system is sustainable at present and is not heading towards being unsustainable, as the current Government claims.

Petition, Victoria: stop restraint/abuse of disabled children in schools

By bobb |

Please be aware of the petition at http://www.change.org/en-AU/petitions/he-was-tied-up-to-a-chair-and-left-there-end-this-abuse-of-disabled-children-in-schools

"This haunts me every day of my life… the things that happened to me - like being locked in small rooms, being pulled to the ground by my neck and having someone hold me down when I can't breathe, being tied up, this is not ok."

NDIS ignores science on early intervention for children with autism

By bobb |

The National Disability Insurance Agency (NDIA) is ignoring expert advice and existing government policy on early intervention for children with autism spectrum disorder (ASD). Instead, the NDIA adopted a generic and often inappropriate approach that does not address the distinct needs of children with ASD.

The Department of Health advised families* in 2006 that children with ASD need “best practice” intensive ASD-specific early intervention. Later, the Department of Social Security (formerly FaHCSIA) effectively asked ASD experts “are you sure … and what about just 'good' practice?”. The experts responded pretty much “Yep, we are sure … and 'good practice' isn't much different from 'best practice'” (links* to the report are here MS Word & PDF and the Guidelines for Good practice 2012 MS Word & PDF ... webpage here).

letter: mad bureaucracy in the NDIA

By bobb |

Dear Minister Andrews MP

I am writing to you about the mad bureaucracy in the NDIA, particularly in relation to the funding of transport associated with disability services.

In many instances, a disability service is either provided in a person's home or requires transport in order that a person can access the service. If the cost of transport is not included, then the service is simply not financially viable.

Workforce issues relating to autism spectrum disorder, early intervention and the NDIS

By bobb |

Introduction

The latest NDIS Quarterly Report (up to 31/3/2014) [MS Word or PDF] shows that more NDIS participants (24%) have autism spectrum disorder (ASD) than any other distinct disability type. There was a sudden increase from the previous two quarterly reports that showed no NDIS participants with “autism” at all (previously, we assume the NDIS hid participants with ASD in other categories, such as “intellectual disability” or “neurological disorder”).

Australian Governments largely ignore the simple fact that generic disability services, often called specialist disability services, do not meet the disability service and support needs of people with ASD. The ABS reported the dire outcomes for people with ASD experience in Australia: see http://www.abs.gov.au/ausstats/abs@.nsf/mf/4428.0. The consequences of neglecting their specific needs is that people with ASD experience abysmal outcomes in education, labour force participation and service access; people with ASD have appalling outcomes that are far worse than those reported for people with a disability generally.

contact NDIS about functional assessment for ASD

By bobb |

Sent via the NDIS contact form (see http://www.ndis.gov.au/form/contact-form) on 30/5/2014

I see from various documents on the NDIS website that a person with autism spectrum disorder (ASD), as well as needing evidence of a formal diagnosis, also needs a "severity level" ... or the NDIS will make its own functional assessment to determine his severity level. As my son's diagnosis was done before there were severity levels associated with ASD diagnoses, I expect he will need an NDIS functional assessment to determine his severity level.

Please can you provide details of:

Really? ACT Government report on ASD given "fail" grade

By bobb |

A review of the ACT Government's latest report on services for people affected by autism spectrum disorder (ASD) gives the ACT Government a "fail".

Executive Summary

The Legislative Assembly asked the ACT Government to report on “support provided for autism diagnosis and services and the potential for further reforms”. The Minister presented the report to the Assembly in May 2013. Following numerous requests, the Minister gave a copy of the report to representative of people affected by autism spectrum disorder (ASD) on 23/4/2014. The Minister took 11 months to hand over a copy of the report to the ASD community in the ACT.

This review of that report finds that the ACT Government's information about ASD and the service and support needs of people affected by ASD is often incorrect. For example, the report under-estimates the number of Australian children diagnosed with ASD by an enormous factor of three (3).