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The ABC has a page with links to its autism news - see https://www.abc.net.au/news/topic/autism-spectrum-disorder
The following list shows A4's recent advocacy. This list contains both publications (including briefs and submissions) and communications (letters & emails).
To find a (free) disability advocate to help you, try:
The NDIS has achieved a new low: its Fraud Fusion Taskforce or some other internal “integrity” unit is sabotaging supports for some autistic NDIS participants with high and complex needs.
A4 received evidence that a secret entity in the NDIA is withholding payments for essential supports for NDIS participants with high and complex needs including supports that the NDIS agreed to provide in AAT s42C settlements.
A4's Co-convenor wrote to the NDIS and the responsible Ministers with questions about the changes to the NDIS that came into effect on 10/10/2024. Many people feel the NDIS's descriptions and explanations were very confusing.
The Acting Deputy CEO, Service Design and Improvement replied on 2/2/2025. There is a link to the emails below.
Sadly, the response is not very helpful.
One of the big changes is the two new lists that are meant to list things that the NDIS can fund, and things that it cannot fund. There are many problems with this approach.
The South West Autism Network (SWAN) supports the introduction of General Foundational Supports but expresses significant concerns about the proposed rollout's practicality, pace, and potential risks. This submission highlights the importance of a co-designed, inclusive, and equitable approach that places people with disability and their families at the centre of all planning and implementation.
Key concerns include:
Whether you’re preparing your child for their first day of school or helping them navigate the challenges of adolescence, our platform is here to support you.
The letter below says there are 134K autistic children getting CA(child) and 148.5K autistic NDIS participants in the relevant age group. In 2022, the ABS SDAC estimates there are 161K autistic Australians most of whom would be eligible for CA(child). At 9% growth per years, the ABS estimate would be around 191K in 2024. These data suggest that it is likely that in 2024 around 30% of eligible autistic children did not get CA(child). A4 suspects that those missing out are likely to be children who most need this Foundational Support.
A4, with many other disability advocates, wrote to the Prime Minister explaining why Australia needs a dedicated Minister for Disability and a dedicated Department of Disability Equality & Inclusion that is staffed by and for people with disability. The letter says:
The proportion of young children (age 0 to 6 years) diagnosed with autism in the NDIS has declined significantly since the full roll-out of the NDIS. The number of autistic NDIS participants aged 0-6 years old in the NDIS decreased 32% in the 2 years from 30/9/2022 to 30/9/2024.
The following chart shows the number of children in the NDIS with different types of "primary disability" according to data published by the NDIS on their website.
Updated data ... Dec 2024
Bob Buckley provided the submission below to the Oversight Committee of the National Autism Strategy (NAS) and the relevant Ministers.
It was written quickly ... with less consultation than is ideal. While it's his submission, a summary of the issues raised was shared with A4's Management Group who provided input towards the submission.
A4 provided detailed commenatry on parts of the Health working group's draft Health Roadmap for Autism.
Response received 8/7/2024 - see below
The Hon Mark Dreyfus KC MP
Attorney-General
PO Box 6022
Parliament House
Canberra ACT 2600
Dear Attorney-General
Subject: protection for AAT s42 agreements with the NDIA
A4's submission on the government's proposed changes to the NDIS legislation have been published (as No. 142) on the Committee's website - see https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/NDISAmendment2024/Submissions
Or you can download a copy using the links below.