Post on Prime Minister Albanese's contact form:

Please find attached a letter describing concerns from the Disability Representative Organisation (DRO) for autistic Australians, the national group that represents and advocates for the full autistic spectrum including many autistic Australians diagnosed formally with severe and/or profound disability many of whom cannot speak for themselves and whose interests are not represented by autistic self-advocates (who mainly represent their own part of the autism spectrum). 

Bob Buckley lodged a formal complaint to The Nightly about their publication of an article MARK RILEY: Drastic changes coming to NDIS as unofficial rorting by parents is increasing cost to taxpayers 18/4/2026 that claims:

The only reasonable assumption is that parents have been gaming the system, exaggerating their children’s symptoms in order to secure packages. 

Maddison Leach

It's going to be much easier and cheaper to get an Attention Deficit Hyperactivity Disorder [ADHD] diagnosis in NSW and some Australians are calling for Autism Spectrum Disorder to be next.

Ashlee Law always knew she experienced the world differently but signs of her ADHD and autism were overlooked for decades.

Dear Ministers

The NDIS shut down AEIOU, an early intervention service for severely or profoundly autistic very young children. This was the type of service that should have been essential for many autistic children who will remain in the the NDIS following the imminent Thriving Kids purge. 

Attached is an article that proposes positive ways forward rather than the government's continuing war of autistic Australians ... some of who are among the nations most vulnerable citizens. 

Please contact me if you have any questions.

Introduction

The NDIS Review correctly indicated that the NDIS needs “to improve the planning process and focus on a person’s disability support needs”.

The Review was wrong to suggest that the NDIS already focussed on “diagnosis or functional impairment”. The NDIS has shown repeatedly that it does not understand autism diagnosis, or the support needs that arise from “functional impairment” due to autism. 

The AFR has published yet another completely uninformed and un-evidenced piece Blame diagnostic inflation for the NDIS’ $10 billion Autism bill - see https://archive.md/p1f9i 

The same author wrote The end of cash for diagnosis? Now that would be a good thing 28/8/2025 - maybe he expects clinicians to diagnose complex conditions for free? Is he advocating moving clinical diagnosis back as a government service? I doubt that very much.

Ros Thomas

Laura Clarke, 52, and Simon Lewis, 49, whose youngest daughter Maddie, 16, has severe autism, told The Australian Weekend Magazine they had not seen an NDIS case worker in five years, “not since the day she entered the system”.

Dear NDIS Ministers Butler and McAllister