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cruel NDIS policy targets the most autistic and vulnerable NDIS participants

By convenor |

NDIS policy (AAT Case Management Guide Applied Behavioural Analysis (ABA) - see below) fails some of the youngest and most severely autistic NDIS participants. Clinicians advise that some children with severe/profound or classic autism need intensive early intervention for their autism. NDIS policy (see below) says funding for the required early intervention depends on families winning a case against the government in the Administrative Appeals Tribunal (AAT).

NDIS providers struggling to remain viable amid funding issues as people with disability lose access to support and employment

By convenor |
Peter Thorn and his father John standing side-by-side and smiling. Peter looks like he's ready to go swimming. John's top says "Special Olympics Australia, Greater Canberra".

For the past seven years, Peter Thorn has thrived under his National Disability Insurance Scheme (NDIS) plan.

As someone who is non-verbal with autism, the support he receives allows him to live alone, volunteer regularly, go to the gym and be part of a Special Olympic swimming squad.

He has also been receiving overnight support — a time where he is most vulnerable.

But 10 months ago, he was told there was an "error" in his plan, turning his seven days of overnight support per week into seven days a year, without explanation.

Carers are increasingly socially isolated and highly distressed, national survey reveals

By bobb |
female carer looking worried or stressed

In short:

First results from the 2024 National Carer Survey showed about 60 per cent of respondents reported being socially isolated, and around half suffered from high or very high levels of psychological distress.

These figures were similar to or slightly higher than those found in the 2022 National Carer Survey.

What's next?

With the number of carers in Australia growing, experts argue that more sustainable investment is needed in formal support.

Hannah's son was put in a box at school. She's one of many parents calling out the practice

By bobb |
boy-size cardboard box

Zacharias Szumer

The widespread use of 'restrictive practices' in Australian schools is leaving children with disability traumatised and their parents exasperated. Some teachers are also appalled by what they've seen.

Hannah's nine-year-old son Max is intelligent, particularly in "maths, science and thinking outside the box," she says.

Yet, because of behavioural issues he was having at his school in regional Western Australia, he was put in a box — literally.

SBS News has changed both their names for privacy.

Autism diagnoses rising among U.S. children, adults

By bobb |
child's hands and letter-tiles saying "autism"

Big surges in new autism diagnoses among young adults, as well a rise in diagnoses for girls and young women, have driven a near-tripling of U.S. autism cases in just over a decade, researchers report.

Data on over 12 million patients enrolled in major U.S. health care systems found that between 2011 and 2022 the number of people diagnosed with autism climbed by 175%, according to a study published Oct. 30 in the journal JAMA Network Open.

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