In response to our letter in April 2011, A4 received the (completely unsatisfactory and inappropriate) response below from the Ministerial Liaison and Support Section of the Department of Health and Ageing.

This completely missed the point that A4 asked that a submission be considered for the Budget ... the opportunity is now well past.

In 2010, the Australian Government commissioned another report on services and supports for autistic children and their families.

The report is in two parts but is presented in a single document:

Key findings 

This review has produced an estimate of the annual economic costs of Autism Spectrum Disorder (ASD) in Australia, updating a previous study completed in April 2007. 

This review has produced an updated estimate of the annual economic costs of ASD in Australia, including the burden of disease, of between $8.1 billion (low prevalence) and $11.2 billion (high prevalence), with a mid-point of $9.7 billion (all estimates are in December 2010 dollars). 

Wandering is a critical safety issue for children with ASD.

The Interactive Autism Network (IAN), www.ianproject.org, the nation's largest online autism research project, reported this week the preliminary results of the first major survey on wandering among individuals with autism spectrum disorders (ASD).

Approximately half of 800 parents who completed the survey reported that their child leaves safe places, with the behavior peaking at age four. Among these families, nearly half say that their child has gone missing long enough to cause significant concern about safety.

A4 sent the letter below asking the Minister for Mental Health to include some mental health recommendation in the coming Budget.

By John Elder Robison

What, exactly, is self-advocacy and what is its place in the autism community?

Autism is a communication disorder, with a broad range of affect. Some people's autism makes them eccentric and geeky. Other people can't speak at all, as a result of more severe autistic disability.

Is there something wrong with the scientific method?

by Jonah Lehrer December 13, 2010

The foreword to this report says "the value of informal care has increased to exceed $40 billion per annum in 2010, 33% higher than in 2005". It says this is based on $31 per hour replacement costs. Probably, some of the value is estimated based on conjugate/centre-based care - so better care would be more expensive.

This report is not autism/ASD specific ... but is contains valuable and relevant material.

Research on only one treatment is rigorous enough to earn an A grade

Image: Photograph by Joi, courtesy Flickr

By Nancy Shute October 7, 2010

Parents who research treatments for autism are confronted with a bewildering array of options, almost all of which have never been tested for safety and effectiveness. Organizations like The Cochrane Collaboration, which reviews the quality of evidence for medical treatments, are putting more effort into evaluating popular alternative treatments.

So far, the most comprehensive review of alternative autism treatments comes from two pediatricians: Susan Hyman of the University of Rochester School of Medicine Golisano Children's Hospital at Strong and Susan Levy, a clinical professor of pediatrics at the University of Pennsylvania School of Medicine and The Children's Hospital of Philadelphia. Their 2008 analysis gave each treatment a letter grade for the quality of the research conducted up to that point; the mark, however, is not a ranking of the treatment's safety or effectiveness.