A single mother has called for a re-think of the National Disability Insurance Scheme after she was left without enough support to properly care for her severely disabled son.
Tammie Lansley, a volunteer firefighter from Sydney's west, has struggled every day for the past decade to care for her son Nathan Brincat.
Nathan, 13, has the mind and body of a toddler because of a debilitating genetic condition called mitochondrial disease.
Tammie fears she may have to see Nathan institutionalised.