to NDIA CEO & Chair

By bobb |

Dr Helen Nugent
Chairman

Mr Robert De Luca
Chief Executive Officer

Thank you for you letter, 18 May 2018 in response to A4's media release.

Mr Peter de Natris did not "advise [me] by phone on 15 May 2018" of anything. He did not call me. I note that a spokesperson for your organisation told The Guardian (see https://www.theguardian.com/australia-news/2018/may/18/ndis-mistakenly-posts-changes-restricting-access-for-autistic-children) that someone from the NDIA called me ... but that is not true.

Autistic adults need more help: expert

By bobb |

There is concern older Australians on the autism spectrum are being let down by mental health professionals who lack awareness of the developmental condition.

Researchers are calling for urgent training of psychiatrists on the diagnosis and management of autism in adults, who are at greater risk of suicide.

Older Australians on the autism spectrum are being let down by a gap in mental health services for autistic adults, a gathering of psychiatrists has been told.

NDIS legal bill hitting $10m a year

By bobb |

The agency running the ­$22 billion National Disability ­Insurance Scheme is spending up to $10 million a year on barristers and legal services in a bid to arrest the dramatic rise in the number of people successfully appealing for more money in their support packages or trying to get into the scheme.

The agency has been explicit in its fears over the future of the scheme, saying the risk to its ­financial stability is “extreme” from unfavourable court and tribunal decisions that have the ­potential to “vastly increase the scope of both access and reasonable and necessary supports”.

This is what parents of autistic children want you to know

By bobb |

THE majority of Australians have heard of autism but less than a third actually feel confident interacting with and supporting autistic people and their families.

Ally Foster

“IF YOU’VE met one person with autism, you’ve met one person with autism.”

This well-known quote by Dr Stephen Shore, internationally renowned for his research surrounding autism, shows that living with the condition can mean different things to different people.

Australian Autism Research Council established by Autism CRC

By bobb |

We are pleased to announce we are establishing an Australian Autism Research Council to review and determine national priorities for autism research and address areas of need for the autistic and autism communities

Our vision is that the priorities established by the Australian Autism Research Council will guide the future focus of research activities and research funding by government as well as research and development undertaken by non-government organisations and other industry members who provide programs and services for the autism community.

a report into the National Disability Insurance Agency’s (NDIA) handling of reviews of decisions

By bobb |

Commonwealth Ombudsman Michael Manthorpe today released a report into the National Disability Insurance Agency’s (NDIA) handling of reviews of decisions under the National Disability Insurance Scheme Act 2013. The report discusses systemic issues highlighted by complaints and stakeholder feedback including significant backlogs, delays in decision making and poor communication practices.

'Set up to fail': Canberra's NDIS drop out rate soars as calls grow for overhaul

By bobb |

Sherryn Groch

Canberrans are leaving the National Disability Insurance Scheme at the highest rate in the country, as services and advocates in the ACT call for an overhaul of the scheme's internal bureaucracy.

Between September and December 2017, 139 people joined the scheme in the ACT but 101 others left. Figures provided by the National Disability Insurance Agency, which runs the scheme, confirmed 381 Canberrans had exited the NDIS since 2013.

Autism surge triggers rationing of NDIS services

By bobb |

Rick Morton

The early-intervention strategy for children with autism in the $22 billion NDIS is in disarray, and ­rationing has been introduced for services worth $300 million a year after 30,000 kids were granted ­access.

Worldwide best practice for autism intervention in young children, known as Applied Behaviour Analysis, requires a minimum of 20 hours of one-on-one therapy a week, but under the ­National Disability Insurance Scheme most of the youngest children receive about half of that, with packages between $10,000 and $15,000 a year.