'Profoundly irresponsible': How the NDIS is failing the autistic

By bobb |

Madeleine Ryan

I am autistic and much of the terminology that’s used to describe autism often feels confusing, and disempowering.

Although the subject is frequently in the news and being talked about the diagnostics coined by doctors, professors and scientists in relation to it are often disconnected from my life, and the lives of autistic adults and children. All the puzzling terms, labels and categories can make it harder for us to receive help when we need it and harder for the rest of the world to understand us.

RACGP: NDIS autism disconnect: Is the driver need or money?

By bobb |

When advocating for people with a disability in Australia, one becomes indurated to the disappointments provided by the Government. We were treated to another example this month, writes Dr James Best.

News teaser
Dr Best believes if children with Level 2 ASD are removed from the NDIS automatic qualification list, already strained families will face more red tape before they can access the scheme.

response to Angela Shanahan’s misguided article

By bobb |

Heidi Brandis

In response to Angela Shanahan’s misguided article in the Weekend Australian, I wrote this to the editor of the paper last night:



Dear Editor

Hoping you can assist - I’m in a quandary as to which of Angela Shanahan’s myriad misguided, incorrect, offensive and ignorant comments to address first? (“On spectrum of needs, NDIS should axe ASD”, 26 May).



Let’s address each one:

On spectrum of needs, NDIS should axe ASD

By bobb |

Warning: it is best to not read the following. This article contains factual errors, prejudice and poor journalism. It is on this website as part of the history of autism in Australian media ... and to show the level of profound ignorance about ASD in much of the Australian community. For example, the claim below that "the vast majority are on low levels of the spectrum" is contrary to available data published by the Australian Bureau of Statistics showing most people diagnosed with ASD have sever or profound disability. She's a serial offender: see http://a4.org.au/node/1218

In 2013 I wrote an Inquirer piece asking: What are the practical economic restraints on disability services in a society with an ever expanding notion of disability? Where do we draw the line? Who will and who won’t be eligible for assistance under the National Disability Insurance Scheme?

NDIS introduces onerous and inequitable eligibility requirements for autistic children

By convenor |

On the 23/5/2018, the Minister for Social Security wrote to autism organisations to "assure" them that there would be "extensive consultation with stakeholders and the community" before making any changes to NDIS eligibility (see http://a4.org.au/node/1761).

Three days later, on the 26/5/2018, the NDIS tweeted that it "updated our website" and provided a link to https://ndis.gov.au/people-with-disability/access-requirements/completing-your-access-request-form/evidence-of-disability. The web page has new eligibility requirements. Autism stakeholders were not consulted about the changes to the NDIS eligibility process that appeared on that webpage.

Action Must Be Taken to Stop Bullying of Students with Disability

By bobb |

Stephanie Gotlib

Unfortunately, bullying of students with disability, including abuse and violence at school is not a new, unusual or unknown experience, writes Children and Young People with Disability Australia CEO Stephanie Gotlib.

Many in our community were rightly sickened by the footage which emerged recently of a young boy with disability being violently assaulted by peers outside a secondary school in Melbourne.

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