diagnoses and advice for autistic children

By convenor |
Subject: Fwd: diagnoses and advice for autistic children
Date: Sat, 9 Jan 2021 12:35:56 +1100
From: Bob Buckley (A4 Convenor) <convenor@a4.org.au>
To: Minister.Hunt@health.gov.au
CC: Chris.Bowen.MP@aph.gov.au, Senator Jordon Steele-John <senator.steele-john@aph.gov.au>, The Hon. Linda Burney MP <Linda.Burney.MP@aph.gov.au>, The Hon. Mr. Shorten MP <Bill.Shorten.MP@aph.gov.au>, The Hon Stuart Robert MP <stuart.robert.mp@aph.gov.au>

Dear The Hon G. Hunt MP

Autism Aspergers Advocacy Australia (A4) recently sent this letter to the organisations below. We are very concerned about delayed diagnosis of autistic children and the consequent long-term detriment this brings for them, their families and the community generally.

NDIS autism assessment pilot leaves young man ‘embarrassed’

By bobb |

The NDIS has resumed its pilot into independent assessments, which aims to improve the “equity and consistency” in the organisation’s decision making.

But Autism Awareness Australia CEO Nicole Rogerson said the assessment for her son Jack - who lives with Autism - "didn't go to plan" and had to be ended early.

“They sat down with a list of things he couldn’t do and asked him to rate his own disability,” Mrs Rogerson told Ali Moore on ABC Radio Melbourne.

“He was embarrassed - he was looking between his dad and I and the assessor.”

Autism advocate withdraws from NDIS contacted assessment pilot

By convenor |

Comments on twitter indicate that an NDIS "independent assessment", part of its pilot, did not go well.

This is hardly surprising. The NDIA's CEO sent a letter to all NDIS participants claiming "The [NDIA's assessment] tools have been ... used all over the world for many years". There is no such tool for assessing the capability, and more importantly the support needs, of autistic people. There most certainly is no assessment tool for ASD that has been used, and shown to be accurate, "all over the world for many years".

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