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NDIS - response to "BCBAs and the NDIS pricelist"

By convenor |

MC18-002124

Mr Bob Buckley
Convenor
Autism Aspergers Advocacy Australia (A4) convenor@a4.org.au

Dear Mr Buckley

Thank you for your email of 11 August 2018 to the former Minister for Social Services, the Hon Dan Tehan MP, about the National Disability Insurance Scheme (NDIS) and registered behavioural clinicians. Your correspondence has been referred to the National Disability Insurance Agency (NDIA) for reply. I apologise for the delay in responding.

Thousands of autistic girls and women 'going undiagnosed' due to gender bias

By bobb |

Hannah Devlin

Number of girls and women with the condition in UK may be vastly underestimated, leading neuroscientist says

Hundreds of thousands of girls and women with autism are going undiagnosed due to it being viewed as a “male condition”, according to one of the UK’s leading neuroscientists.

Autism learning centre for Nelson Bay

By convenor |

The quest to find a learning, training and respite facility for people with autism in Port Stephens has almost totally consumed the lives of Nelson Bay parents Les and Judy Merrett.

In 2010 the couple, whose 15-year-old son Dylan has autism, established the charity Autism Action with an aim to assist Port Stephens families impacted by autism and other intellectual disabilities.

We've seen autistic doctors and detectives on TV, how about Rain Woman?

By bobb |

Madeleine Ryan

I'm autistic, and I've rarely ever seen myself in the television characters that are supposed to represent me. There seem to be a lot of doctors, detectives – and dudes. It's hard to find stories about openly autistic girls and women navigating life as openly autistic girls and women; and even harder to find ones where autism is treated as more than a freakish gift, or as a disability.

key message - A4 and NDIA meeting, 4 July 2018

By convenor |

Bob Buckley, A4 Convenor, met with the National Disability Insurance Agency (NDIA) Chairman, Dr Helen Nugent AO, and NDIA CEO, Robert De Luca, along with Ms Vicki Rundle and Mr Peter De Natris, at the NDIA’s Canberra office on 4th July 2018. Mary Mallet, DANA CEO, also attended.

The purpose of the meeting was to discuss how to improve outcomes substantially for autistic people of all ages, including children.

In relation to children, this includes:

Genetic studies intend to help people with autism, not wipe them out

By bobb |

Simon Baron-Cohen

There are fears genetics research into autism will lead to eugenics and eradication of the condition. That must never come to pass, says Simon Baron-Cohen

Genetics plays a large role in causing autism, so knowing more about which genes influence it could allow a better understanding of the condition.

The Australian pig farm benefitting from employing people with autism

By bobb |

Cassandra Hough

It is not easy for people on the autism spectrum to find work, but an Australian piggery is trying to change that.

SunPork Farms is part of an initiative called Autism and Agriculture which is aiming to develop career paths for people on the autism spectrum in animal care roles.

In Australia only about 40 per cent of autistic adults have a job.

Kimono Lounge exhibits works by autistic artist Damian Colpo

By bobb |

Frances Vinall

A new exhibition at Kimono Lounge showcases the works of Launceston artist Damian Colpo. 

The Kimono Lounge, a former church, is a gallery and shop in the home of Sarah Trousdale. She doubles as an art therapy teacher, and her gallery is a space for people of all abilities.

Colpo, who has autism, is a student of Trousdale’s, and has found art as a way to show his creativity, unique worldview, and love of animals. 

Inconsistent prevalence estimates highlight studies’ flaws

By bobb |

Jessica Wright

The lore about autism is that prevalence rates are rising — leading many people to call it, misleadingly, an ‘epidemic.’ Even among scientists, many assume that the largest prevalence estimates are the most accurate.

But epidemiologists know that the prevalence depends greatly on the methods used in the study.