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Have your say on the future of autism research

By bobb |

Today we call on autistic Australians, families, carers, and the broader autism community to have their say on the future of autism research priorities. Individuals and organisations involved in providing services and supports, as well as managing policy that affect autistic people and the autism community are also asked to contribute.



The outcome of this community consultation process will help guide the future focus of autism research activities and research funding in Australia.

 

My friend and mentor Les Murray - autistic savant

By bobb |

British-born author Daniel Tammet corresponded with poet Les Murray, who died on April 29 aged 80, and translated his poems into French. In his 2017 book Every Word is a Bird We Teach to Sing, Tammet describes how Murray’s inspiring example helped him come to terms with being autistic. In this edited extract he recounts how he and Murray came to share a stage in Paris in 2015.

Daniel Tammet

The Australian poet Les Murray makes life hard for those who wish to describe him. It isn't only his work, some 30 books over 50 years. It is the man. In PR terms, Murray seems the antipode of Updikean dapperness, cold Coetzee intensity, Zadie Smith's glamour. His author photographs, which appear to be snapshots, can best be described as ordinary. The bald man's hat, the double chin, the plain T-shirt. A photograph, accompanying his New Selected Poems, shows him at a kitchen table, grandfatherly in his glasses. The artlessness is that of an autodidact. Murray has always written as his own man. Fashions, schools, even the occasional dictionary definition, he serenely flouts. To read him is to know him.

Advocates blame NDIS failures as families give up severely disabled children to child protection

By bobb |

Richard Willingham

Children with high-needs disabilities are living in child protection because their parents can no look longer after them, with advocates blaming a lack of support from the National Disability Insurance Scheme (NDIS) for forcing parents to give up their children.

Loving Lucy

By bobb |

Parenting can be tough—even when your child is considered so-called ‘normal’. Nine-year-old Lucy looks like a curly haired angel, but she's often strangely manipulative and physically violent. Her mum and dad are still searching for a diagnosis which could make sense of her extreme behaviour. But their patience and love for Lucy is extraordinary.

Ballarat musician Jack Stacey is breaking the perceived limits of autism

By bobb |

Rochelle Kirkham

Young Ballarat musician Jack Stacey is changing perceptions of autism and setting an example to others to live beyond their 'limits'.

At four-years-old Jack was diagnosed with autism, a lifelong developmental condition that affects how an individual relates to their environment and interacts with other people.

At the time of diagnosis doctors estimated he would only be able to write his own name and read basic text.

'I can't change what happened to Matty': family of disabled man sues state over rape

By bobb |

Jewel Topsfield

When Maria Thomas was told her autistic son had been raped in the bathroom of his group home the missing piece of a ghastly puzzle fell into place.

Ms Thomas had been haunted by a change in her son Matthew’s behaviour but because he is non-verbal she couldn’t work out what had happened.

“Matty didn’t want me to leave him in the shower, he kept holding my hand,” Ms Thomas says. “His behaviour deteriorated, he didn’t want us to go, he kept saying: ‘Stay, stay’.”

‘Ready to try anything’: Parents say education is failing autistic kids

By bobb |

Pippa Bradshaw

Parents of children with autism have called for an overhaul to an education system they say is failing their kids.

Mum Kristy is at her wits' end trying to get help for her 13-year-old daughter.

"She just goes crazy," Kristy said.

"It can start off by just being silly, she gets quite hyper, silly, and then she can get abusive verbally. From there she can get physical."

Mum Kristy is at her wits' end trying to get help for her daughter. (A Current Affair)