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Respite care inspired by family experience

By bobb |

Alesha Capone

Marina Ivelja knows the difficulties of looking for respite care for someone you love.

Mrs Ivelja is 16 years older than her older brother, who has autism, an intellectual disability, complex partial seizures and severe self-harming behaviours.

While growing up, she witnessed his diagnosis, integration with special schools and all the different services her family dealt with.

Mrs Ivelja said that this motivated her to establish her respite service, Beyond Disability Services, which opened in Bacchus Marsh during November 2021.

New job led to ‘broken life’ under disability scheme spruiked as success story

By bobb |

Luke Henriques-Gomes

Woman tells inquiry how her experiences at ‘coffee school’ in $1bn-a-year federal program damaged her health and left her heartbroken

On her first day in an exciting new job, Mzia walked in to find a small “Breville-style” coffee machine placed on a computer desk in the reception.

Next to the machine was a container of long-life milk.

Mzia looked at the small Breville machine and told a senior manager: “This is not a commercial machine.”

Federal Election - coming in 2022

By convenor |

With a federal election on its way, autism-related politics is a current issue. This is a real chance for Australian politicians to take positive action and for the autism community to tell their prospective political representative what they can do to improve outcomes. Here is some material ...

The time has come for Australia to get serious about Autism

Shifting the dial on autism

‘Wildly unreasonable’: agency slashes mother’s NDIS funding and then her daughter’s

By bobb |

Jannine Scott says funding had been ‘life-changing’, but now feels every time she interacts with the NDIA ‘it’s combative’

When Jannine Scott first joined her daughter Bethany on the national disability insurance scheme, it was “life-changing”.

The scheme funded in-home support workers for Scott, who has a spinal cord condition, and even paid for a power wheelchair and other assistive technology.

Scripts make jab easier for autistic kids

By bobb |

Melbourne mum Leah Dean knows better than most that attending a COVID-19 vaccination appointment is anything but simple for children with autism.

Loud noises, crowds and bright lights anywhere, let alone at a busy immunisation hub – coupled with the uncertainty of a brand-new experience – can make her teenaged son very anxious.

But with the help of a set of special step-by-step instructions called a social script, 13-year-old Alexander was recently able to successfully have both his shots.

NDIS too focussed on costs over people's needs, says autism peak body

By bobb |

On Mornings with Virginia Trioli

Download NDIS too focussed on costs over people: autism peak body (6.39 MB)

The chief executive of the peak body supporting Victorians with autism has slammed the NDIS as too focussed on costs over people's needs.

It comes after the ABC revealed hundreds of people with autism and intellectual disabilities have had their NDIS funding slashed because the payments were found not to represent "value for money".