Warning: this material is depressing
Autism Spectrum Australia released a report on the lives of adults with autism spectrum disorder but without intellectual disability, a group of vulnerable citizens who are often/routinely denied appropriate and necessary services and supports.
The Coalition in line with its pre-election commitment has directed that DisabilityCare resume its original name of the National Disability Insurance Scheme (NDIS).
The return to NDIS has two purposes. The first is to leave behind a name that was seen by many people with disability as patronising and not reflecting the intent of the scheme to have the individual at the centre and in charge.
People with disability don't so much want to be cared for as supported to be as independent as they can.
Many people would find it impossible to devote the time and energy to advocacy activities while also caring for a child with a disability. For Bob Buckley, however, having a child with Autism Spectrum Disorder (ASD) has driven his desire to raise awareness, attract funding and advocate for better opportunities for people living with ASD. After his son was diagnosed with the disorder, Bob began to apply his outstanding academic and analytical skills to become one of Australia’s most formidable ASD activists. In 2002, Bob co-founded Autism Aspergers Advocacy Australia, which he convenes to this day.
Australia's Autism CRC has posted its website — see http://www.autismcrc.com.au/
It also posted a media release ...
Australian researchers are combining genetic, biological and behavioural research to develop a world first screening tool that could enable early identification of autism risk.
Bob Buckley's presentation at the Asia Pacific Autism Conference 2013 (APAC'13), entitled Data describing Autism Spectrum Disorder in Australia: information relating to diagnoses, prevalence, service access and outcomes, continues a series of presentations describing data, mainly from government sources, that indicate the number of people in Australia diagnosed with Autism Spectrum Disorder (ASD) and some relevant outcome measures. The presentation shows:
DisabilityCare, the renamed and emerging NDIS, "launched" in a number of locations (states?). Now we start to see how it is being implemented. Our hope is that the scheme will be genuinely person-centred: that is, it will focus on identifying and meeting the needs of each person (individual) with a disability. Our particular concerns relate to people with autism spectrum disorder (ASD).
Autism Aspergers Advocacy Australia (A4) sent feedback on FaHCSIA's Draft Proposed National Framework for Reducing the Use of Restrictive Practices in the Disability Service Sector (see http://www.fahcsia.gov.au/our-responsibilities/disability-and-carers/pu…).
The main points in A4's feedback were:
Kathryn Wicks, Dan Harrison
The national disability insurance scheme will cover ''most'' people with autism and could pay the full cost of early intervention programs, Disability Reform Minister Jenny Macklin has declared in the latest clue as to what the $22 billion-a-year scheme will cover.
see also NDIS should include autism: Abbott.
