NDIS a two-year 'nightmare' for Border mother

By bobb |

Struggles with NDIS requirements and the lack of support provided pushed a NSW mother to the point of considering foster care for her daughter.

Elizabeth Noone said she no longer wanted this, but described her experience with the National Disability Insurance Scheme over the past two years as "a nightmare".

Her daughter Jasmine, 11, has autism, an intellectual disability, epilepsy, diabetes, is non-verbal and often becomes agitated.

Autistic woman's death 'not isolated' case

By bobb |

Perry Duffin

The death of a young woman in the bathroom of a Sydney group home shouldn't be seen as an isolated event and will be one of a number of cases submitted to a royal commission by a leading autism advocacy group.

Merna Aprem was weeks from her 21st birthday when she slipped below the water of her bath at a group home in Sydney's west last week. She couldn't be revived.

Her devastated mother, Tanya Petrus, is demanding to know how her daughter - who had epilepsy and autism - could have been left alone to die.

Mum demands answers after death in care

By bobb |

Perry Duffin

The invitations for Merna Aprem's 21st have been sent out but, instead of celebrating a milestone birthday, the avid Star Wars fan will next week be laid to rest in her party dress.

The autistic and epileptic 20-year-old had lived at a group home in Sydney's west for a few months when she slipped below the water in the bathtub and drowned last Thursday, her mother Tanya Petrus told AAP.

"She'd written all her birthday invitations," the grieving mother said through tears.

My friend and mentor Les Murray - autistic savant

By bobb |

British-born author Daniel Tammet corresponded with poet Les Murray, who died on April 29 aged 80, and translated his poems into French. In his 2017 book Every Word is a Bird We Teach to Sing, Tammet describes how Murray’s inspiring example helped him come to terms with being autistic. In this edited extract he recounts how he and Murray came to share a stage in Paris in 2015.

Daniel Tammet

The Australian poet Les Murray makes life hard for those who wish to describe him. It isn't only his work, some 30 books over 50 years. It is the man. In PR terms, Murray seems the antipode of Updikean dapperness, cold Coetzee intensity, Zadie Smith's glamour. His author photographs, which appear to be snapshots, can best be described as ordinary. The bald man's hat, the double chin, the plain T-shirt. A photograph, accompanying his New Selected Poems, shows him at a kitchen table, grandfatherly in his glasses. The artlessness is that of an autodidact. Murray has always written as his own man. Fashions, schools, even the occasional dictionary definition, he serenely flouts. To read him is to know him.

Ballarat musician Jack Stacey is breaking the perceived limits of autism

By bobb |

Rochelle Kirkham

Young Ballarat musician Jack Stacey is changing perceptions of autism and setting an example to others to live beyond their 'limits'.

At four-years-old Jack was diagnosed with autism, a lifelong developmental condition that affects how an individual relates to their environment and interacts with other people.

At the time of diagnosis doctors estimated he would only be able to write his own name and read basic text.

'I can't change what happened to Matty': family of disabled man sues state over rape

By bobb |

Jewel Topsfield

When Maria Thomas was told her autistic son had been raped in the bathroom of his group home the missing piece of a ghastly puzzle fell into place.

Ms Thomas had been haunted by a change in her son Matthew’s behaviour but because he is non-verbal she couldn’t work out what had happened.

“Matty didn’t want me to leave him in the shower, he kept holding my hand,” Ms Thomas says. “His behaviour deteriorated, he didn’t want us to go, he kept saying: ‘Stay, stay’.”

Autistic Australians are being locked out of the workforce, study finds

By bobb |

Of unemployed people with autism, 54% surveyed said they had never held a job despite wanting to

Australians living with autism are being locked out of the workforce, while some of those who found paid employment say they have previously lost a job because they are on the spectrum, new research claims.

A study commissioned by autism peak body Amaze, and described as an Australian-first by its authors, surveyed the employment experiences of those living with autism and their carers, as well as attitudes towards autistic people in the workforce.

State support grows for disability inquiry

By bobb |

Daniel McCulloch

SCOTT Morrison expects to secure terms of reference and state agreement for a royal commission into the disability sector before the federal election in May.

The prime minister predicts state and territory governments will come on board "within days", saying it is imperative they are involved.

"To not have those jurisdictions subject to the royal commission, I think, would impair it overwhelmingly," he said on Wednesday.