Oliver Hetherington-Page says his experience of autism doesn't fit the pop culture mould

By bobb |

I'm not Sheldon Cooper.

I am, however, autistic, which means I'm constantly compared to him.

This is ironic because according to the producers of The Big Bang Theory, Sheldon Cooper isn't actually autistic.

And yet my autism is constantly compared – and seemingly failing to live up – to this fictional character.

‘It’s life or death for us’: The struggle for this mother to get her kids with autism vaccinated

By bobb |

By Eden Gillespie

A mother of five autistic children from regional NSW told The Feed she’s struggled immensely with getting them vaccinated. With the children still unvaccinated, and a severe asthmatic herself, she’s fearful about the state’s plans to open up in October.

NSW’s reopening has been described as the ‘light at the end of the tunnel’ but as severe asthmatics and the parents of five children with autism, Casey* and her husband are terrified of where the eased restrictions could leave them.

creating trust in the NDIA is about more than the so-called Independent Assessments

By convenor |

Minister Reynolds has the NDIA and disability representatives working on rebuilding trust. The NDIA and some parts of the disability sector seem to think this is just about recent conduct.

For the autism sector, there are deeper issues from the outset.

Here is a letter from  A4 to the Minister briefly describing some of the history and issues.

Coalition has made a mess of NDIS, says Judy Fischer

By bobb |

The widow of former deputy prime minister Tim Fischer has accused the Coalition of mismanaging the National Disability ­Insurance Scheme, which she says is shrouded in secrecy and too ­important to fail.

Judy Brewer, a high-profile disability sector advocate whose son Harrison has autism, said she was angry the ­government appeared to be blaming people with disabilities for cost blowouts when it was likely the $24bn scheme’s financial assumptions were wrong.

NDIS FOI 21/22-0100 - misinformation and untruths

By convenor |

The NDIA did not respond to a number of A4's concerns. Issues of particular concern were:

  • "misinformation and untruths" from the NDIA's CEO to NDIS participants about the assessment tools that were planned for functional assessment of autistic NDIS participants for the so-called Independent Assessments, and
  • inexpert and misguided advice from the NDIA's Independent Advisory Council (IAC) about early intervention for autistic children.

The NDIA did not respond to A4 about its concerns.

Coalition government’s ongoing war on autistic Australians

By convenor |

Dear Senator the Hon Linda Reynolds,

Subject: Government’s ongoing war on autistic Australian

Autism Aspergers Advocacy Australia (A4) deplores media reports (see Annex below) saying that “The Minister responsible for the National Disability Insurance Scheme has blamed an uptick of Australia’s aged, autistic and obese people for the ‘unsustainable’ rising costs of the service”. Your government’s war on autism is unacceptable. We complained about it before and were ignored. 

Aged autistic people are one of the smallest subgroups in the NDIS: there were just 125 of them in June 2021, just 0.8% of 14K+ NDIS participants in that age group. While their funding level is higher than average for the NDIS, we doubt the numbers in this very small group will increase significantly for some time. We have not found NDIA reporting on obesity; we doubt the NDIS even has reliable data on obesity of NDIS participants. 

Royal Commission welcomes new roadmap to improve the health of people with intellectual disability

By bobb |

The Disability Royal Commission welcomes the Australian Government’s release of a new national roadmap that aims to improve the health of people with intellectual disability (Roadmap).

The Royal Commission strongly supports any initiative that addresses the serious inequities people with cognitive disability face in the current health system, and that attempts to develop a system in which they have access to high quality, timely and comprehensive care.

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