Oliver Hetherington-Page says his experience of autism doesn't fit the pop culture mould

By bobb |

I'm not Sheldon Cooper.

I am, however, autistic, which means I'm constantly compared to him.

This is ironic because according to the producers of The Big Bang Theory, Sheldon Cooper isn't actually autistic.

And yet my autism is constantly compared – and seemingly failing to live up – to this fictional character.

‘It’s life or death for us’: The struggle for this mother to get her kids with autism vaccinated

By bobb |

By Eden Gillespie

A mother of five autistic children from regional NSW told The Feed she’s struggled immensely with getting them vaccinated. With the children still unvaccinated, and a severe asthmatic herself, she’s fearful about the state’s plans to open up in October.

NSW’s reopening has been described as the ‘light at the end of the tunnel’ but as severe asthmatics and the parents of five children with autism, Casey* and her husband are terrified of where the eased restrictions could leave them.

creating trust in the NDIA is about more than the so-called Independent Assessments

By convenor |

Minister Reynolds has the NDIA and disability representatives working on rebuilding trust. The NDIA and some parts of the disability sector seem to think this is just about recent conduct.

For the autism sector, there are deeper issues from the outset.

Here is a letter from  A4 to the Minister briefly describing some of the history and issues.

Coalition has made a mess of NDIS, says Judy Fischer

By bobb |

The widow of former deputy prime minister Tim Fischer has accused the Coalition of mismanaging the National Disability ­Insurance Scheme, which she says is shrouded in secrecy and too ­important to fail.

Judy Brewer, a high-profile disability sector advocate whose son Harrison has autism, said she was angry the ­government appeared to be blaming people with disabilities for cost blowouts when it was likely the $24bn scheme’s financial assumptions were wrong.

NDIS FOI 21/22-0100 - misinformation and untruths

By convenor |

The NDIA did not respond to a number of A4's concerns. Issues of particular concern were:

  • "misinformation and untruths" from the NDIA's CEO to NDIS participants about the assessment tools that were planned for functional assessment of autistic NDIS participants for the so-called Independent Assessments, and
  • inexpert and misguided advice from the NDIA's Independent Advisory Council (IAC) about early intervention for autistic children.

The NDIA did not respond to A4 about its concerns.