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Submission on National Disability Advocacy Framework

By convenor |

To the DSS advocacy and access team,

Thank you for the opportunity to provide input to your review of the National Disability Advocacy Framework.

Autism Aspergers Advocacy Australia, known as A4, is a nation organisation that focuses on systemic advocacy for the growing number of people living with autism spectrum disorder (ASD) in Australia. The Australian Bureau of Statistics (ABS) estimates that the number of Australians with ASD over recent times has been …

year 1998 2003 2009 2012
autism '000s 13.2 30.4 64.4 115.4
5 year growth   2.3 1.9 2.6
severe & profound   87% 74% 73%

 

According to the Australian Bureau of Statistics (ABS), most people who are diagnosed with ASD have severe or profound disability.

Pediatricians seeing three times the autism patients in five years

By bobb |

Australian pediatricians are seeing more new patients with autism, accordin­g to a study that shows the proportion of first consult­ations taken up by the diagnosis has risen from 5 per cent to 15 per cent in just five years.

Associate professor Harriet Hiscock, from the Murdoch Child­rens Research Institute, yesterday said a follow-up to her previous study, which was published in theMedical Journal of Australia, found autism was taking up more of the pediatric workload.

Autism explosion leaves NDIS in disorder

By bobb |

As rates of autism diagnoses soar around the world, the tale of two Australian families struggling to pay for expensive early-intervention therapies for their children — one by themselves, the other through government — ­underscores the divisive cost.

In Sydney, Tina Lopez and her husband, Arron Dickens, are dipping into their savings to pay about $42,000 a year out of their pockets for their son James because a federal program stumps up only $12,000 over two years. In South Australia, where The Australian revealed children with autism now made up 46 per cent of the delayed, oversubscribed National Disability Insurance Scheme trial, the Andrews family had to fight to get a $40,000 package from the scheme for son David, 4.

estimating the cost of autism

By bobb |

A research paper has been published estimating the cost of autism in the USA is $268 billion to the USA in 2015.

The US population (~320 million) is about 131/3 times that of Australia (24 million). If we assume an Australian A$1 buys the same in Australia as a US$1 buys in the USA, then on the same basis the annual cost of autism/ASD to the Australian economy is roughly $20 billion in 2015. This is a substantial amount of money in the Australian economy.

NDIS: autism rates blow out in SA, likely to be same nationally

By bobb |

Rick Morton

Social Affairs Reporter, Sydney

Children with autism-spectrum disorders have flooded the trial of the National Disability Insurance Scheme in South Australia and make up almost half of all participants, contributing to a blowout in the numbers which would be replicated across the country when the full scheme launches.

Autism: Sharp spike in cases a result of shifting diagnosis methods, researchers say

By bobb |

Editorial note: The conclusion reached in these these stories is contentious/disputed. Autism is not "swallowing up" other diagnoses as is suggested. Other information is available elsewhere, for example herehere and here.

The way autism is diagnosed has led to an apparent tripling in cases in recent years that does not reflect reality, researchers say.

Rather, more youths with intellectual or developmental disabilities are being reclassified as autistic, the United States-based study published in American Journal of Medical Genetics found.

University of Western Australia Telethon Kids Institute's Andrew Whitehouse said the trend was "almost certainly the same in Australia".

The prevalence of autism in the US was just one in 5,000 in 1975.

It leapt to one in 150 in 2002, and reached one in 68 in 2012, according to the US Centres for Disease Control and Prevention.

"This new research provides the first direct evidence that much of the increase may be attributable merely to a reclassification of individuals with related neurological disorders rather than to an actual increase in the rate of new cases of autism," the study authors wrote.

'Staggeringly high' rates of autism mate crime in Wirral, report finds

By bobb |

More than 80% of people aged 16-25 with autism or Asperger's in Wirral have been victims of so-called mate crime, a report has found.

Wirral Autistic Society said the number young people who had suffered from mate crime was "staggeringly high".

Victims of this type of crime - by people who claim to be friends - suffer verbal and physical abuse and theft.

The survey, carried out earlier this year, collated 141 responses, which were all submitted anonymously.