This article by Professor Andrew Whitehouse, Bennet Chair of Autism at Telethon Kids Institute and from The University of Western Australia originally appeared in The Conversation on November 9, 2022.

A heated debate about autism was reignited after the recent publication of an article advocating for use of the term “profound autism”.

“How is he?” my mother in law asked worriedly as she hugged me tight.

“Not good, I don’t know how to reach him, he is here, but so far away”, I explained through the tears running down my face.

My precious son had been struggling for weeks emotionally and physically. From my own personal experience with depression and suicidal thoughts, I knew the depths he was in, while fighting to keep his head above water.

On the spectrum himself, my little boy’s struggle was not uncommon. Autism and suicide, unfortunately, can go together often. My concern for him was great.

Steven Morris

Mandatory programme named after Oliver McGowan, whose mother led a campaign after his death in 2016

Mandatory training for health and care staff in England to support people with a learning disability and autistic people has been launched following a grieving mother’s four-year campaign.

Alison Singer

Earlier this month, I attended the Autism-Europe International Congress in Kraków, Poland, where the theme was “Happy Journey Through Life.” Although this sounds like an admirable goal, I would not choose the word “happy” to describe my daughter Jodie’s life with profound autism, nor would many other families who struggle with the day-to-day challenges of life on the profound end of the autism spectrum, a reality that is largely invisible to mainstream society.

Preventing, reducing, and improving interactions between autistic individuals and the criminal justice system are urgent research and policy priorities. Research should guide evidence-based programs and policies that limit unnecessary interactions between autistic individuals and the criminal justice system and address documented high rates of victimization among autistic individuals.