Advocacy

The following list shows A4's recent advocacy. This list contains both submissions and communications (letters & emails).

Victorian OPA Position statement: NDIS Independent Assessments

Submitted by bobb on Wed, 2/12/2020 - 00:00

The Office of the Public Advocate stands with the disability advocacy sector in requesting that the NDIA reconsider its proposal to introduce independent assessments.

The NDIA has said independent assessments are to be part of the access process in early 2021. The assessments will at first be used to determine the eligibility of people applying for access to the NDIS as well as to determine reasonable and necessary supports to be included in a participant’s plan.

Interventions for children on the autism spectrum: A synthesis of research evidence

Submitted by bobb on Tue, 10/11/2020 - 11:15

Dear person

Based on your previous interest in our publication the National Guideline for the Assessment and Diagnosis of Autism, I am writing to let you know we have just published a new landmark report for families, clinicians, researchers and policy makers, which synthesises the best available high-quality evidence about interventions for children on the autism spectrum aged up to 12 years.

Autism behind bars

Submitted by bobb on Tue, 10/11/2020 - 00:00

Andrew Beasley was quickly losing his cool. It was October 2015, and he was about two years into his sentence at the Federal Correctional Institution, Fort Dix in New Jersey.

Beasley, then 32, had left his MP3 player on a charging station in the facility’s computer room, but when he went to retrieve it, it was gone. He thought he knew who had it and frantically started to look for the man.

“I’m forgetting politics. I’m forgetting everything. I’m just looking for my MP3 player,” says Beasley, who had been diagnosed with autism two years earlier.

mental health support for autistic Australians - unanswered questions

Submitted by convenor on Sun, 1/11/2020 - 08:01
Subject: Fwd: mental health support for autistic Australians
Date: Sun, 1 Nov 2020 07:51:28 +1100
From: Bob Buckley (A4 Convenor) <convenor@a4.org.au>
To: Minister.Hunt@health.gov.au

The Hon Greg Hunt MP
PO Box 6022
House of Representatives, Parliament House
Canberra ACT 2600

Dear Minister The Hon Greg Hunt MP

Autism Aspergers Advocacy Australia (A4) has not received a response to the email below. This means A4's Unanswered Questions policy comes into effect.

Report - Public hearing 4 - Healthcare for people with cognitive disability

Submitted by bobb on Thu, 22/10/2020 - 11:43

The Disability Royal Commission released a report summarising its public hearing #4 that is about Health care for people with cognitive disability. The DRC  includes autistic people among people with cognitive disability.

The report focuses on NSW and  describes many poor experiences of autistic people in the health systems. It says:

Experts and advocates also noted the dearth of initiatives to ensure that people with autism can access and receive appropriate health care.

Response to email to Minister Robert regarding Expert Reference Group to implement the National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorders in Australia

Submitted by convenor on Thu, 22/10/2020 - 08:47

Subject:
Re: Response to email to Minister Robert regarding Expert Reference Group to implement the National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorders in Australia [SEC=OFFICIAL]

Date:
Thu, 22 Oct 2020 08:41:53 +1100

From:
Bob Buckley (A4 Convenor) <convenor@a4.org.au>

Organisation:
Autism Aspergers Advocacy Australia

To:
Autism Policy <AutismPolicy@dss.gov.au>

Commentary on IAC's Advice

Submitted by convenor on Wed, 14/10/2020 - 15:36

The NDIA’s Independent Advisory Council (IAC) published a report to the NDIA titled Promoting best practice in early childhood early intervention (March 2020) Paper, herein referred to as the IAC’s Advice. The website says the IAC gave this advice to the NDIA Board.

...

In conclusion, the IAC’s Advice to the NDIA Board on early intervention for children with disability rejects and dismisses the substantial research that shows clearly the distinct and mostly unmet needs of autistic children. It aims to solve misconceptions, problems that do not actually exist, being that:

Dear Mr Hoffman - your open letter

Submitted by convenor on Wed, 14/10/2020 - 06:26

Dear Mr Hoffman

I received my copy of your open letter to all NDIS participants at 4.02pm today.

Throughout the letter, you use the term “independent assessments” despite the whole disability sector having advised you that the NDIA’s contracted assessments are not “independent”. Insisting on calling them “independent” when they are not independent at all is classic “Yes Minister” conduct. Your failure to acknowledge and refusal to respect the views of the disability community shows you are not interested in improving the NDIS for the people who depend on it.