Urgent need for cause of death reporting system for Australians with intellectual disability

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

A total of 732 Australian adults with an intellectual disability died in NSW over six years, many from causes or conditions that could have been avoided with more appropriate health care and monitoring.

NDIS: Federal Government announces independent review of National Disability Insurance Scheme

Henry Belot

The Federal Government has announced an independent review of the National Disability Insurance Scheme (NDIS) to examine overall costs, value for money and its long-term sustainability.

Treasurer Scott Morrison announced the Productivity Commission review on Friday afternoon with a position paper to be released in May, followed by a report in September.

Disability Minister’s office disappoints on autism

Media Release

The response from Disability Minister Christian Porter MP’s office on increasing autism diagnoses is very disappointing according to Bob Buckley, A4 Convenor. Autism Aspergers Advocacy Australia or A4 is the national grass-roots advocacy group for autism spectrum disorder.

Recently, A4 obtained data from Government and reported that the number of children diagnoses with autism continues to increase at a significant rate, as it has for several decades. In June 2016, there were 73,166 (>2.4%) Australian children aged 5-15 years inclusive who had their formal autism diagnosis registered with the Commonwealth Government. For this age group, autism is now more common than intellectual disability.

How to dispute a Centrelink debt

A4 editor: The following is not specifically about autism or disability ... it is here to help/inform any autistic adults who are having issues with Centrelink's cruel new system for scamming/fabricating debts from the most vulnerable.

Sally WhyteJournalist

Does Centrelink think you owe money that you don't think you owe? Here is what to do next.

Centrelink’s new automatic debt generation computer system is generating 20,000 debt notices a week, despite more and more stories emerging about obvious problems with the system.

incredible numbers of 'school students with disability'

Bob Buckley

Recently, the Education Council released its first report based on data collected for the Nationally Consistent Collection of Data: School Students with Disability.

The report describes 18% of school students as having disability. This rate of disability among school students in the major states (see Table 3 in the report) aligns remarkably closely with the average disability rate (18%) in the Australian population. But this level of disability is far more students than other reports of children with disability.

AMA: Early diagnosis and intervention essential for children with ASD

The AMA today called for coordinated action to speed up the diagnosis of Autism Spectrum Disorder (ASD) in children, and to provide early intervention therapies to give children with ASD the best outcomes possible.

AMA President, Dr Michael Gannon, also called on the Federal Government to rule out any future narrowing of the eligibility requirements for people with ASD to access the National Disability Insurance Scheme (NDIS).

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