Submission to Disability Royal Commission on Education of autistic students

Submitted by convenor on

On 3/2/2020, A4 sent its belated submission responding to the Disability Royal Commission's (DRC) Issues Paper on Education of students with disability. The submission was due in December, but A4 has limited resources to do this type of work. Hopefully, the DRC will consider A4's submission.

The submission makes the following suggestions to the Royal Commission.

Children's access to disability funding depending on where they live dubbed 'developmental apartheid'

Submitted by bobb on

Children with developmental delays such as autism have become the victims of postcode discrimination, with some in poorer suburbs waiting hundreds of days for the crucial diagnosis often needed to access the National Disability Insurance Scheme (NDIS).

Key points:

  • ABC investigation finds children with disabilities in poorer areas are facing longer wait times
  • One child waited 697 days to be seen, with another on the list for 640 days before being assessed
  • Parents have described the stress their families have endured while they wait

Children with autism in WA 'languishing' in mental health wards, youth advocates say

Submitted by bobb on

Rhiannon Shine

Children with autism are languishing in mental health wards for "months", leaving others stuck on emergency departments for days waiting for an admission, according to Western Australia's chief mental health advocate.

Key points:

  • Ms Colvin has written to the State Government calling for urgent action
  • She says one child had to wait up to five days to access urgent mental health care
  • The Government says hospital discharge delays are due to the transition to the NDIS

Early Treatment for Autism Is Critical, New Report Says

Submitted by bobb on

Perri Klass, M.D.

Experts urge early identification and referral for treatment, even if a formal diagnosis has not been confirmed.

In December, the American Academy of Pediatrics put out a new clinical report on autism, an extensive document with an enormous list of references, summarizing 12 years of intense research and clinical activity. During this time, the diagnostic categories changed — Asperger’s syndrome and pervasive developmental disorder, diagnostic categories that once included many children, are no longer used, and we now consider all these children (and adults) to have autism spectrum disorder, or A.S.D.

TIME 2019 Person of the Year: Greta Thunberg

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Charlotte Alter, Suyin Haynes and Justin Worland

Greta Thunberg sits in silence in the cabin of the boat that will take her across the Atlantic Ocean. Inside, there’s a cow skull hanging on the wall, a faded globe, a child’s yellow raincoat. Outside, it’s a tempest: rain pelts the boat, ice coats the decks, and the sea batters the vessel that will take this slight girl, her father and a few companions from Virginia to Portugal. For a moment, it’s as if Thunberg were the eye of a hurricane, a pool of resolve at the center of swirling chaos. In here, she speaks quietly. Out there, the entire natural world seems to amplify her small voice, screaming along with her.

“We can’t just continue living as if there was no tomorrow, because there is a tomorrow,” she says, tugging on the sleeve of her blue sweatshirt. “That is all we are saying.”

The Senate: Select Committee on Autism

Submitted by convenor on

Media Release

5 December 2019

A new Senate Select Committee on Autism has been established. The committee is made up of politicians who will look into the services, support and life outcomes for autistic people in Australia.

What will the committee look into?

The committee will look at a wide range of issues relating to autism – including diagnosis, education, health including mental health, employment, justice and rights, and housing.

New Plan To Support Victoria’s Autism Community

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The Andrews Labor Government has released a five-year plan to provide autistic Victorians greater opportunities for choice and community participation.

Minister for Disability, Ageing and Carers Luke Donnellan today launched the Victorian Autism Plan with representatives of the Autism Plan Advisory Group who contributed to the plan’s development.

The Victorian Autism Plan sets out actions to improve the lives of autistic Victorians and their families and carers, backed by $7.1 million in funding.

ABS autism data 2018

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The Australian Bureau of Statistics (ABS) released data about autism from its 2018 Survey of Disability, Ageing and Carers (SDAC) - see https://www.abs.gov.au/AUSSTATS/abs@...

The ABS reports that in 2018:

  • there were 205,200 autistic Australians (estimated), a 25.1% increase from 164,000 in 2015
  • over 3% of children aged 5-14 years are diagnosed autistic.
  • "males were 3.5 times more likely than females to [be autistic]".
  • the number of autistic Australians with severe of profound disability was 68.9% in 2018
  • outcomes for autistic people in education and employment remain abysmal
  • and much more.

Major parliamentary inquiry into autism

Submitted by bobb on

Matt Coughlan

Autism will be the subject of a wide-ranging parliamentary inquiry looking at services, support and life outcomes for people on the spectrum.

The Senate on Wednesday established a select committee on autism which will look at the need for a national strategy.

Liberal senator and committee chair Hollie Hughes, whose 10-year-old son Fred has autism, said the inquiry would be the first of its kind.

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