NDIS - another massive rort: Bernardi

Editorial: nearly one year ago, the Conservatives claimed the NDIS is a rort. While it may not be what they meant, the Government is rorting the NDIS: instead of providing the support that autistic Australians needs, the Commonwealth Government is sucking revenue back from autistic people on the NDIS into its coffers to fund it's paper-thin budget surplus. Senator Bernardi mentions families of autistic children specifically.

Australian Conservatives leader Cory Bernardi is warning that the National Disability Insurance Scheme is already being rorted.

Australia adopts standards for autism diagnosis, to mixed reviews

 

Australia has become the latest country to establish guidelines for diagnosing autism, with the goal of making diagnoses consistent nationwide.

Clinicians typically diagnose autism using criteria outlined in the Diagnostic and Statistical Manual of Mental Disorders or the International Classification of Diseases. The new guidelines do not replace or reform these criteria; rather, they outline a framework for assessing behaviors and determining whether an individual meets the criteria.

Latest test of promising autism therapy shows only mild benefits

child seated at a learning table

A much-touted behavioral therapy for autism, the Early Start Denver Model (ESDM), may not be as effective as its creators had hoped1.

In the latest study of the therapy, it did not improve children’s intelligence quotients (IQ) or adaptive behavior any more than other treatments. Children treated with ESDM showed some improvement in their language, but only at two of the three study sites.

Independent experts say the results are disappointing, and they question some of the methods used to generate them.

Draft Terms of Reference for a Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

DSS crest: Australian Government Department of Social Security

Have your say!

Finally, progress is being made towards a royal commission into violence, abuse, neglect and exploitation of Australians with disability.

You can provide input to the terms of reference if you are quick (until 28/3/2019): see https://engage.dss.gov.au/royal-commission-into-violence-abuse-neglect-a...

Supporting autistic Australians is a crucial election issue

The next federal election is May 18!

Both A4 and the Australian Autism Alliance have produced material that improves awareness of ASD-related issues ahead of the coming federal election.

A4 encourages autistic people, their families, carers, ... everyone who wants better outcomes for autistic Australians, to share these documents with candidates in the coming May 18 federal election.

You can make a difference! The easiest thing to do is write to political parties: send them (electronic) copies of the documents below and ask them to tell you what they are doing to address issues that are crucial for autistic Australians.

NSW Education: Disability Strategy, A Living Document

The NSW Education department has released its latest "disability strategy" (download here).

In relation to autistic students, it says:

  • autistic students are 33% of "students supported by funded programs distributed by disability type 2017" in NSW (students with intellectual disability make up 40%).
  • "From 2013-17, enrolments of students with autism increased by ~14.5% per year" according to the Education Department's own data ... at this rate, the number of autistic students doubles every 5 years.
  • ...

What's Next for Autistic Adults?

John Elder Robison

We don't know, because most autistic adults are unrecognized and unsupported.

Reading the news, the prognosis for autistic adults looks like a very mixed bag. On one hand are hopeful stories about Project Search, Autism at Work, and Neurodiversity in school. Those accounts portray autistic people as loyal, kind, eager to work, and wanting to make a meaningful contribution. Employers talk about superior attention to detail and exceptional caring about quality and correctness.

Then there are the downsides. One study found that autistic people are nine times more likely to die of suicide. An autism website says 80% of autistic adults are unemployed. Autistics are far more vulnerable to diabetes, anxiety, obesity, depression and a host of other serious medical problems. Most autistic adults never get married, and if they do, it doesn’t last. 

Scott Morrison poised to order royal commission into abuse of people with a disability

Amy Greenbank

Prime Minister Scott Morrison has written to the states and territories asking for their support in establishing a joint inquiry into abuse in the disabled sector.

New South Wales, Victoria and South Australia have confirmed they are behind the probe, but a formal announcement is not expected until Mr Morrison hears back from the other leaders.

Federal Cabinet discussed establishing a royal commission on Tuesday night.

Death rates in people on the autism spectrum twice those of the general population: new research

Isabelle Dubach

People on the autism spectrum have elevated mortality across the lifespan – their overall comparative mortality rate is about twice that of the general population, a new study reveals.

The comparative mortality of people with autism spectrum disorder is twice that of the general population, an Australian-first study by a UNSW PhD student and her supervisors has found. The researchers call for a whole of health and disability systems response to this issue to improve outcomes for this group.

Coalition government must commit to a royal commission into violence & abuse of people with disability

Media release

The Australian Federation of Disability Organisations (AFDO) commends the Senate for approving the motion last Thursday, from Green’s Senator Jordon Steele-John, to establish a Royal Commission (RC) into violence, abuse, exploitation and neglect of people with disability in institutional and wider community settings across Australia.

Opposition leader Bill Shorten personally pledged his and the ALP’s commitment to a Royal Commission back in 2017, which we also commend. This has been followed up with an election promise of $26 million to get the Commission going; the ALP also supported the recent Senate motion along with others from the crossbench.

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