News/Announcements

letter to Senator Abetz

A4's Convenor posted a letter to Senator Abetz this morning. The letter requested a meeting to discuss matters arising from things he said on the ABC's Q&A program first broadcast on 17/2/2014.

The letter contains links to the video of the show ... and our transcript of the section of concern of the show.

It also gives detailed reason for our concerns ... and evidence to support our case.

A4 is concerned that Minister Abetz and the Government:

  • misunderstand and misrepresent people who receive a Disability Support Pension ... often portraying them as welfare bludgers

Abbott Government ignores completely stakeholder advice on disability employment

Following misinformation in the media (see http://a4.org.au/a4/node/742), A4 wrote to the newly elected Prime Minister warning about policy that vilifies people with severe and profound disability for being unemployed.

This information is essential for the Treasurer and the Finance Minister ... but the Prime Minister's office chose to not send the letter to most of the key agencies and Ministers. Apparently, they sent it only to the Department of Social Services. The Social Services Department's response (download below) shows little or no recognition of the letter's content.

Meeting request - Senator Fifield about the NDIS

A4 requested a meeting with Senator Fifield, Assistant Minister for Social Services (responsible for Disability Services), to discuss how to improve the NDIS for people with Autism Spectrum Disorder.

A4 shares some of the concerns raised in The Australian (see http://a4.org.au/a4/node/756) relating to people with Intellectual Disability; at least 30% of people with autism, often severe autism, also have an intellectual disability so we can expect to have some common concerns/issues. A4 and also has concerns that specifically relate to autism.

UC Davis MIND Institute Study Finds That Children Who Have Autism Far More Likely to Have Tummy Troubles

Sacramento, CA (PRWEB) November 06, 2013

The gastrointestinal problems are linked to problem behaviors in children with autism, developmental delay.

Children with autism experience gastrointestinal (GI) upsets such as constipation, diarrhea and sensitivity to foods six-to-eight times more often than do children who are developing typically, and those symptoms are related to behavioral problems, including social withdrawal, irritability and repetitive behaviors, a new study by researchers at the UC Davis MIND Institute has found.

NDIS: reverts to original name ... slowly and cheaply


The Coalition in line with its pre-election commitment has directed that DisabilityCare resume its original name of the National Disability Insurance Scheme (NDIS).

The return to NDIS has two purposes. The first is to leave behind a name that was seen by many people with disability as patronising and not reflecting the intent of the scheme to have the individual at the centre and in charge.

People with disability don't so much want to be cared for as supported to be as independent as they can.

Bob Buckley: State Finalist (ACT) Senior Australian of the Year 2014

Autism activist

Many people would find it impossible to devote the time and energy to advocacy activities while also caring for a child with a disability. For Bob Buckley, however, having a child with Autism Spectrum Disorder (ASD) has driven his desire to raise awareness, attract funding and advocate for better opportunities for people living with ASD. After his son was diagnosed with the disorder, Bob began to apply his outstanding academic and analytical skills to become one of Australia’s most formidable ASD activists. In 2002, Bob co-founded Autism Aspergers Advocacy Australia, which he convenes to this day.

DisabilityCare (NDIS) start: with serious initial concerns relating to people with autism/ASD

DisabilityCare, the renamed and emerging NDIS, "launched" in a number of locations (states?). Now we start to see how it is being implemented. Our hope is that the scheme will be genuinely person-centred: that is, it will focus on identifying and meeting the needs of each person (individual) with a disability. Our particular concerns relate to people with autism spectrum disorder (ASD).

Access to justice in the criminal justice system for people with disability

A4's submission/feedback on the Australian Human Rights Commission (AHRC) Issues Paper on "Access to justice in the criminal justice system for people with disability" (see https://www.humanrights.gov.au/access-justice-criminal-justice-system-pe...) can be downloaded below.

A4 highlights that for people with autism spectrum disorder (ASD), Australia does not have a "justice system", what it has is a legal system; a system of legal processes that rarely delivers justice for people with ASD.

Cooperative Research Centre (CRC) for Living with Autism Spectrum Disorders

Prime Minister Gillard announced $31 million for a CRC for Living with Autism Spectrum Disorders (see http://www.pm.gov.au/press-office/70-million-boost-world-class-research). This is a welcome move from the Gillard Government.

"The implementation of a highly innovative 'whole-of-life' research portfolio will deliver a continuum of support required for people with Autism to participate successfully in education, employment and all facets of the community."

Attorney-General "file and ignore" on disability issues

Previously, Autism Aspergers Advocacy Australia (A4) wrote to Attorneys-General about the rights of people with a disability (see http://a4.org.au/a4/node/438). The letter was emailed twice (once each on 4/1/2012 and 5/1/2012) and there was no indication that it did not arrive at its destination.

There was absolutely no response to the letter, so we put in a request using the Freedom of Information process. The response says:

A4 submission on health and medical research in Australia

A4 sent a submission to the the Review of Health and Medical Research in Australia (see http://www.mckeonreview.org.au/).

The submission suggests that research funding has a greater chance of having more impact when it is addresses health issues with higher "burden of disease and injury". It mentions that autism has a high burden for children (highest for boys), based on the available evidence ... yet very little of Australia's health and medical research funding is spent on autism.

The Disability Clothesline

What is the Disability Clothesline?

We started this project because people with disability and their families did not h
ave a voice.

When we tell our stories about abuse, neglect and violence, people do not always listen.

But if lots of us tell our stories, people will listen.

We want to tell our stories to the Australian community.

We are going to do this by using teeshirts to share our stories.

This will spread the message we want people to hear.

'Disability violence and abuse is not okay.'

You can help us by telling your story.

Pages

Subscribe to News/Announcements