News/Announcements

Georgia and the NDIS

Jason Clare MP portrait - official photograph

The Hon Jason Clare MP
Member for Blaxland
Speech: 12 Feb 2018

Tonight I want to talk about a beautiful little girl who lives in my electorate named Georgia.

Georgia is 9 and she has multiple disabilities.  She has autism, epilepsy and profound global development delay.

Georgia can’t dress herself, or brush her teeth or comb her hair.  She can’t shower on her own.

She has to wear a nappy 24 hours a day.  

She has to wear a onesie - otherwise she will put her hands in her nappy and smear faeces around the house.

MC18-000018 - NDIA meeting request

On 2/2/2018, A4 received a letter dated 25/1/2018 (link to PDF below) from an NDIA official asking to meet with A4.

The meeting was held on 30/1/2018 (before A4 received the written request - it was organised by phone and email).

Note that the letter says the purpose of the meeting was "to discuss your [A4's] concerns".

New hub to support students with autism into employment

Students with autism, anxiety, depression, post-traumatic stress disorder and other neurodiverse needs will soon have greater access to employment opportunities through a new Queensland hub.

The University of Queensland and DXC Technology have partnered to form the Queensland Neurodiversity Hub, which will help students gain work experience with DXC and its partnership organisations.

Girls' Social Camouflage Skills May Delay or Prevent Autism Diagnosis

Study adds evidence to growing belief that current clinical tools fail to capture unique autism presentations in females

WASHINGTON – On parent-reporting measures, girls with autism seem to struggle more than boys with performing routine tasks like getting up and dressed or making small talk, even when the study group is normalized to meet similar basic clinical diagnostic criteria across sexes. The findings add to the growing evidence that girls with autism may show symptoms differently than boys, and that some of the social difficulties experienced by females with autism may be masked during clinical assessments. 

disappointing NDIS response on early intervention for autistic children

statue of naked disappointed man

Dear Minister and Assistant Minister

Autism Aspergers Advocacy Australia, known as A4, recently received a very inadequate response (MC17-001434) to our emails to you dated 5/11/2017 and 11/12/2017. Our emails to you expressed extensive concerns about the NDIS and specifically its approach to early intervention for autistic children.

Ms Christine Faulkner, General Manager of the NDIS, says: “The Assistant Minister has asked me to reply to you on her behalf”.

The result must be so disheartening for you. Ms Faulkner’s response to us, on your behalf, is so disappointing for a collection of reasons.


A response (of sorts) to this letter can be seen at http://a4.org.au/node/1654 (it is also very disappointing).

Government's response on NDIS and early intervention for autistic children 20/12/2017

MC17-001434

There are supports that are unable to be provided under the NDIS, as they are the responsibility of other service systems. These systems and their responsibilities are outlined in the Council of Australian Governments (COAG) Principles to Determine the Responsibility of the NDIS and other Service Systems. These principles were agreed to by respective jurisdictions and the Commonwealth. More information about the COAG principles that govern the NDIS can be found at: www.coag.gov.au.

Supporting Victorians Living With Autism

Getting things done. Making things fair. Victoria

Minister for Housing, Disability and Ageing

The Andrews Labor Government will invest more than $22 million as an immediate response to the Inquiry into Services for People with Autism Spectrum Disorder.

Minister for Housing, Disability and Ageing Martin Foley today announced the funding would cover eight priority areas of action to be addressed as part of a comprehensive Autism Plan.

email to NDIA 23/11/2017

Dear Mr Garton

I received a letter on the 20/3/2017 (see below) that said you (the NDIA) would "be in contact to arrange a suitable meeting time and date in the week beginning the 19th June 2017" (see also, http://a4.org.au/node/1438). As yet, I have not heard from you. Is there any progress towards arranging this meeting?

Bob Buckley
Convenor, Autism Aspergers Advocacy Australia (A4)

letter: exclusion of autism from NDIS Independent Advisory Council

The Hon Christian Porter MP
Minister for Social Services
Parliament House
CANBERRA ACT 2600

cc: The Hon Jane Prentice MP, Assistant Minister for Social Services and Disability Services; Mr Alastair McEwin, Disability Discrimination Commissioner; Mr David Bowen, NDIA CEO; Dr Helen Nugent AO, Chair of the NDIA Board.

 

Dear The Hon. C. Porter MP

Senator Hanson needs to go back to school

Media Release

The Australian Federation of Disability Organisations today condemned comments by Senator Pauline Hanson who suggested that children with disability should be removed from mainstream schools.

Senator Hanson told the Senate this morning that children with disability did not belong in mainstream classrooms because they were disruptive and, as a result, teachers spent too much time with them at the expense of other students.

Senator Hanson suggested that students with disability should instead be segregated in “special classrooms”. 

New approach for autism

The Hon Jane Prentice MP, Assistant Minister for Social Services and Disability Services has announced a new way to help those with autism access the services they need.

Mrs Prentice said collaboration between the Cooperative Research Centre for Living with Autism (Autism CRC) and National Disability Insurance Agency (NDIA) will help the autism community access more support.

FUNDING OF NDIS NOW SECURE

AFDO Budget Media Release

 The Australian Federation of Disability Organisations (AFDO) welcomes the Turnbull Government's commitment in tonight's budget to fully fund the National Disability Insurance Scheme (NDIS).

"The Government's announcement tonight gives peace of mind to people with disability that funding for the scheme is secure and it will continue to be rolled out as planned," said AFDO CEO, Mr Ross Joyce.

autism/ASD and DSP eligibility

Government and Executive Services Branch
Department of Social Services

 

Dear sir/madam

Thank you for your letter/response (MC17-006035, 20/4/2017) to A4's letter (29/3/2017).

In the previous letter, Autism Aspergers Advocacy Australia (known as A4) expressed concern that "the wording that Government uses appears to exclude autistic people from the Disability Support Pension" and asked whether that was the Government's intent. 

Secret NDIA business - no ABA for school students

A month ago, a NDIS planner in the ACT told a mother that the NDIA had "two publically available reports that the NDIS is using to avoid funding ABA therapies in kids aged 5 and above i.e. school-aged kids".  The NDIS planner told the mother:

  1. once kids reach school, the schools are meant to fund appropriate behavioural management plans (also occupational and speech therapy),
  2. as kids after school are too tired to have therapy, then these unnamed studies state that ABA therapy is no longer effective, and
  3. the NDIS would not fund ABA for kids at school. 

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