News/Announcements

FUNDING OF NDIS NOW SECURE

AFDO Budget Media Release

 The Australian Federation of Disability Organisations (AFDO) welcomes the Turnbull Government's commitment in tonight's budget to fully fund the National Disability Insurance Scheme (NDIS).

"The Government's announcement tonight gives peace of mind to people with disability that funding for the scheme is secure and it will continue to be rolled out as planned," said AFDO CEO, Mr Ross Joyce.

autism/ASD and DSP eligibility

Government and Executive Services Branch
Department of Social Services

 

Dear sir/madam

Thank you for your letter/response (MC17-006035, 20/4/2017) to A4's letter (29/3/2017).

In the previous letter, Autism Aspergers Advocacy Australia (known as A4) expressed concern that "the wording that Government uses appears to exclude autistic people from the Disability Support Pension" and asked whether that was the Government's intent. 

ASD advocates in the ACT call to register behavioural clinicians

Speaking Out for Autism Spectrum Disorder (SOfASD), a local ASD advocacy group in the ACT, wrote to the ACT Minister for Education raising concerns about the lack if discernible progress with getting registered/certified behavioural service and support for autistic students in ACT schools. SOfASD asked for a meeting but the Minister's response ignored their request.

Submission on National Disability Insurance Scheme (NDIS) Costs

A4 made a submission to the Productivity Commission study of National Disability Insurance Scheme (NDIS) Costs

The submission's conclusion says:

Previously, we said that the NDIS has substantial potential to improve the lives of autistic people. They may have access to more services and supports. They have more choice and control of the services and supports they access.

Disability Support Pension - are autistic people eligible?

Dear the Hon Jane Prentice MP

We thank you and Mr Russell de Burgh for your response (MC17-003466 on 28/3/2017) to A4's email, and especially for specifically answering the questions we asked.

The webpage your response refers to, https://www.humanservices.gov.au/customer/services/centrelink/disability-support-pension, says (repeatedly) that people who are either "permanently blind" or " have a physical, intellectual or psychiatric condition" may be eligible for Disability Support Pension. We understand that people who to not satisfy this description are not eligible. This description of eligible people excludes most autistic people. Autism spectrum disorder (ASD) is not regarded as a "psychiatric condition" even though the diagnostic criteria are described in the DSM-5, a manual of mental disorders. Current estimates suggest under 50% of autistic people have "intellectual impairment". ASD is not physical impairment. The Australian Bureau of Statistics estimated that in 2012, 73% of autistic Australians have severe or profound disability (limitations on core activities), so it would seem that a high proportion of autistic adults should be eligible for DSP.

Follow-up with NDIA on Early Intervention (cont.)

Dear Mr Buckley,

Please find attached correspondence from William Garton.  Feel free to contact me if you have any questions in regards to this correspondence.

Kind Regards

Executive Assistant to William Garton,
General Manager – Access and Operations Management,
Participants and Planning
National Disability Insurance Agency


Mr Bob Buckley
Convenor
Autism Aspergers Advocacy Australia (A4)

Dear Mr Buckley,

Thank you for your correspondence dated 2 February 2017.

Children with disabilities 3 times more likely to be maltreated but risk varies by disability type

A Telethon Kids Institute study has found children with disabilities are three times more likely to be maltreated compared to other children but that risk varies by type of disability.

Researchers analysed 524,534 children born in Western Australia between 1990-2010 for the study “Maltreatment Risk among Children with Disabilities”, published in the journal Pediatrics.

Overall, they found 4.6 per cent of all children had a maltreatment allegation.

Inquiry into the provision of services under the NDIS for people with psychosocial disabilities related to a mental health condition

A4's submission

A4 made a submission to the inquiry by the Joint Standing Committee on the NDIS into the provision of services under the NDIS for people with psychosocial disabilities related to a mental health condition

Urgent need for cause of death reporting system for Australians with intellectual disability

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

A total of 732 Australian adults with an intellectual disability died in NSW over six years, many from causes or conditions that could have been avoided with more appropriate health care and monitoring.

cannot access essential Government website

Having made no progress on this issue, here is a letter that I sent to the Prime Minister:

Dear Prime Minister

Since June 2016 I have been unable to access my son’s myPlace webpage via the myGov website.

I have raised this several times. Yesterday, I spent about 2 hours mostly on hold with the NDIA and the myGov helpline.

The NDIA said their system is working perfectly and that the problem is with the myGov website. The myGov help people check out their system and said the problem is the NDIA’s myPlace system.

Catastrophic Misuse of Inappropriate IQ Tests with People with ASD and Little or No Speech

The Anne McDonald Centre made an alarming submission to the Victorian Parliamentary Inquiry into Services for People with ASD.

It alleges inappropriate testing of non-verbal children, many of whom have ASD ... and subsequently, inappropriate and ineffective teaching in Victorian schools.

The submission can be downloaded from http://www.parliament.vic.gov.au/images/...

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