Rethinking education: the programs for children too distressed to attend school

By bobb |
students hands up in front of school chalkboard

Sophie Black

For increasing numbers of families, school refusal is a crippling problem. But some programs are offering hope by thinking outside the box

As a year 10 coordinator in 2013, high school teacher Craig Hildebrand-Burke began to clock an increasing number of student absences at his school. As he began to contact families, he soon realised that school refusal was becoming “a major presenting issue” for the year 10 cohort at his co-ed Catholic high school in Melbourne’s eastern suburbs.

Readers share stories of school refusal in Australia: ‘It scarred us and changed us forever’

By bobb |
classroom with empty chairs and desks

With education and mental health systems under pressure, families are experiencing distress as a result of children refusing to go to school. Here are some of their stories

Guardian Australia asked readers to share their experiences of school refusal, the commonly used term for children who are so distressed by school that they are unable to attend. Data that differentiates school refusal from other types of absences is hard to obtain, but anecdotally experiences of school refusal are rising.

SA makes history with new autism minister

By bobb |
Emily Bourke

Tim Dornin

South Australia's autism community will get its own state government minister in a national first and a decision hailed as a major step towards greater inclusion.

Emily Bourke has been appointed assistant minister for autism in a bid to ensure people with the neurological condition are better represented.

Premier Peter Malinauskas says he has heard from many South Australians that the time has come for a dedicated effort from government to make autism a priority. 

"That is why we have created this new role," he said on Monday.

The autism advantage - why businesses are hiring autistic people

By bobb |
Chris Varney sitting on steps facing the camera

When Chris Varney was in Year 2 he presented his teacher with an incredibly detailed visual chart of the royal families of Europe from the 14th to the 19th century.

“I just felt I had found a new way of seeing the last millennium. No wonder we have so many revolutions and conflict, these families were way too connected, small community, completely out of touch,” he quips during his TED talk Autism: How my unstoppable mother proved the experts wrong.

‘Fighting for her voice’: mother locked in legal battle with NDIS over daughter’s talker

By bobb |
Ella Stephens and her mother Melanie use her talker device to communicate

Melanie Stephens is caught up in Administrative Appeals Tribunal case after being denied funding for a device to help Ella communicate

A Victorian mother is locked in a battle with the National Disability Insurance Agency over her daughter’s “voice”. At least that’s how Melanie Stephens describes the “talker” device her daughter Ella has been using for four years.

Ella, 11, lives with autism and the rare genetic syndrome cri du chat (5p-), which causes delayed physical development and intellectual disability. She is non-verbal.

Election 2022: Coalition earmarks ambitions to develop national autism strategy

By bobb |
Families and social services minister Anne Ruston. (AAP Image/Mick Tsikas)

Melissa Coade

Ways to build the workforce capability for people living with autism will be one of the key pillars of a Liberal plan to develop a nationwide approach to autism-specific services.

The Coalition has pledged $1 million to develop a strategy within the next year, aimed at improving service integration and access for services and increasing awareness about autism spectrum disorder (ASD).

How autistic NDIS recipients could solve our cybersecurity skills gap

By bobb |

Tess Bennett

Autistic NDIS recipients are willing and able to work but fear if they get a job and lose it they will be ineligible for any future financial support from the scheme, a disabled rights activist says.

Rhett Ellis is an autistic entrepreneur with an interest in technology and cybersecurity who has lobbied the government to introduce autistic employment programs.

How to reduce autism prevalence and save the NDIS

By bobb |
Professor Whitehouse sits facing the camera

Jill Margo

Australia’s leading expert on autism says a new model of intervention could reduce long-term disability from the disorder, by a factor of three, and help to make the ballooning National Disability Insurance Scheme more sustainable.

“The NDIS is currently relying on an outdated model of when to commence autism therapy,” said Andrew Whitehouse, head of Australia’s leading autism research team, CliniKids, based at the Telethon Kids Institute in Perth.

Hannah Gadsby on her autism diagnosis: ‘I’ve always been plagued by a sense that I was a little out of whack’

By bobb |
Hannah Gadsby portrait

Even as a child, the comedian knew her brain was atypical. But it was only in her late 20s that her anxiety, depression and meltdowns finally made sense

ou don’t have to be an expert to know that people with autism don’t get to speak about their own experiences. Until very recently, autism has largely only been understood through the prism of the experience of parents and as a list of observations that mostly neurotypical medical professionals have made and assigned meaning to.

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