Stephen Lunn and Sarah Ison

Joshua Haigh

A heartbroken mother is desperate for answers after her austisic son was allowed to starve to death in hospital.

A mother is calling for an investigation into the failings at a major Queensland hospital after her autistic son died from starvation while under the care of its doctors.

Stewart Kelly, 45, died at Robina Hospital in August last year from starvation and dehydration during a 33-day admission.

Amber Schultz

Children with neurodevelopmental delays risk having the number of supports they access slashed by two-thirds if new restrictions are brought into the National Disability Insurance Scheme to address cost blowouts, a new paper has found.

By Amber Schultz

It took Mariam Mukhtar nearly two years to have her teenage son Raamiz assessed for autism following a paediatric referral, and she fears the delay in getting him support has cost him his high school experience.

“Having support at the right time … that would have been a life-changing experience,” she said.

Stephanie Convery

Chief of Children and Young People with Disability Australia says families are simply seeking help for their children, with the NDIS ‘the only place to turn’

An advocate for people with disabilities has criticised as “unhelpful” and “misleading” reports suggesting families are pursuing autism diagnoses because they see the NDIS as a financial opportunity.

By Natassia Chrysanthos

A diagnosis of autism is unlikely to be enough to guarantee future access to the National Disability Insurance Scheme as the government prepares to clarify that individualised packages were designed only for Australians with profound disabilities.

Elena Filipczyk Autistic writer

It took me two years after my formal autism diagnosis to build up the courage to ask my kind, empathetic GP to help me access the National Disability Insurance Scheme (NDIS). I was mortified, but most of all, I felt like an impostor.

As my GP smiled warmly and took the paperwork off me, she admitted she’d never filled in an NDIS form before. I looked down at my feet and dug my nails into my palms. Was I wasting her time? Was I wasting government money?

Rick Morton

A leaked review document shows the National Disability Insurance Agency used ‘legalistic brinkmanship’ to force disabled people to ‘bargain away their rights’.

A backlog of thousands of National Disability Insurance Scheme tribunal appeals was almost entirely artificial, not based on proper legislative interpretation and driven instead by “external pressures” to rein in costs of the scheme, according to independent reviewers chosen to work through the stricken cases.