NDIS rollout in Sydney: not perfect but at least it's here

By bobb |

Connie Vella had high expectations for the National Disability Insurance Scheme and what it would mean for her four-year-old daughter Hannah, who has bilateral hearing loss.

The Cranebrook woman went to her meeting with an NDIS planner earlier this year, well prepared with quotes from a range of hearing specialists and a list of the supports Hannah would require.

All up, the quotes came to $34,000 including early intervention services, speech pathology, language therapy, a school readiness program and hearing aids.

Mrs Vella was stunned when the planner returned with a package worth $12,000.

"It was a massive gap," she said. "We are supposed to be no worse off under the NDIS. We're a lot worse off. I'm a good advocate for Hannah but there are families out there who'll just accept what's on offer and that worries me for these children."

Screen all children for autism to combat 'devastating' diagnosis delays, says psychiatrist Valsamma Eapen

By bobb |

Belinda Hitchcock knew instinctively something was different with her baby.

Her placid son Bradley, who started talking when he was 18 months old, had regressed to incoherent babbling. By the time Bradley was two he had lost the ability to speak. 

His mother was fobbed off again and again by doctors as she desperately tried to find answers. 

Autism: Parents targeted by pseudo-medical charlatans with bogus treatments

By bobb |

Jane Hansen

PARENTS of autistic children are spending millions of dollars a year on bogus treatments in the hope of a miracle “cure”.

Now there are fears the National Disability Insurance Scheme will be ripped off by these charlatans, who are ­already preying on desperate parents.

Diane Verstappen from Aspire Early Intervention, an evidence-based program, said parents with self-managed funds from the NDIS would be a prime target.

Variability of autism/ASD prevalence between Australian states

By convenor |

The histogram shows the prevalence calculated from the population of children who receive Carer Allowance for Autistic or Asperger's Disorders (DSM-IV) or Autism Spectrum Disorder (DSM-5) at June 2014 relative to the ABS population numbers for the age group ... on both a national and a state/territory basis. 

There is clear variability in diagnosis rates between states/territories with the Northern Territory, Western Australia and the Australian Capital Territory having notably lower diagnosis rates for autism/ASD, well below the national average.

Autism listed in Australian Burden of Disease study

By bobb |

The latest Burden of disease study from the Australian Institute of Health and Welfare (AIHW) puts "autism spectrum disorders" as 14th for males in their list of non-fatal burden (of disease) - see Table 4.3, page 36. "Autism spectrum disorders" rank 3rd for males ages 5-14 years in the "total burden" given in Figure 3.6, page 26, but autism is otherwise absent.  This study is based on data from 2011. 

The debate about diet and autism

By bobb |

Paula Goodyer

"Boy recovers from autism after going gluten free."

"Gluten- free casein-free diet no remedy for autism."

Welcome to the conflicted world of diet and autism where opinion over the benefits of removing gluten (the protein in wheat, rye and barley) and casein (the protein in milk) from the diet is divided. Depending on which website you click on, the gluten-free, casein-free diet is either saviour or undiluted snake oil.