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urgent funding needed for Westmead's One Stop Shop for patients with profound disability

By convenor |

Dear Minister Butler MP

I recently became aware of the Westmead's One Stop Shop pro bono service for profoundly autistic patients (and others with severe disability who otherwise do not access many crucial health services). This service was described on the ABC in 2023.

'Cruel game': cracks showing over NDIS scheme shake-up

By bobb |

Callum Godde

Negotiations on changes to support for autistic children have hit a roadblock as a state premier declares federal Labor is shirking its responsibilities.

The Albanese government wants to move some children with autism and developmental delays off the National Disability Insurance Scheme to rein in spending and keep the scheme viable.

The Thriving Kids program would instead provide early intervention and support for the cohort through mainstream channels such as general practitioners and schools.

Minister's response on ABS SDAC delay

By convenor |

The Hon. Andrew Leigh MP responded negatively to A4's request that the ABS's SDAC survey collect data in 2025 (or 2026) ... ahead of the government's recent decision to wait until 2028.

The Minister's (undated, received 9/10/2025) response is available below. 

A4 does not understand why the survey would return to a six year cycle during the early stages of NDIS stabilisation (or major reform), the start of Thriving Kids, and the design phase of Foundational Supports for people with disability. 

Please conduct the ABS Survey of Disability, Ageing and Carers (in 2025)

By convenor |

Dear Minister Leigh

At the meeting for Disability Representative Organisations (DROs) at Parliament House on 4/9/2025 we were very disappointed to hear from officials that, without any reference to DROs, they decided to defer until 2027 the Australian Bureau of Statistic's (ABS) next data collection for its periodic Survey of Disability, Ageing and Carers (SDAC). An official claimed that the survey is conducted on a five years cycle. This claim is false; mostly, this survey is done on a three year cycle ... and it has not had a five year interval since before 1998 (if ever).