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Long delays in autism diagnosis hurting children’s future

By bobb |

STEPHEN LUNN

The earlier an autistic child is diagnosed, the better their long-term outcomes. So why are initial diagnoses taking longer and longer?

Almost one in three families is waiting more than two years for a diagnosis for their autistic child, significantly more than a decade ago, a new survey finds.

And getting the right support at school for children with autism is a parent or carer’s biggest worry, it concludes.

hoping for a better Administrative Review Tribunal

By bobb |

Dear Justice Kyrou and Mr Michael Hawkins

I write about some of the operations of the NDIS Division of the new Administrative Review Tribunal (ART). 

I am a volunteer advocate and have now helped over 60 NDIS participants in their requests for the AAT and ART to review the statements of participant supports (SOPS) in their NDIS Plans. These have mostly been reviews of plans for young autistic NDIS participants.

Opinion: I’m an NDIS participant. Here’s what I’ve uncovered about this chaotic system

By bobb |

Zoe Mithen Disability advocate

Fixing the NDIS mess requires honesty, not scapegoating. Costs can only be controlled by limiting participant numbers – tightening eligibility – or cutting average per person funding levels

Since 2017, when the National Disability Insurance Scheme rolled out in my area of Victoria, it has been a lifeline.

National Autism Roadmap: Nice vision, but where is the funding?

By convenor |

Media Release

Autistic Australians and their carers are calling for answers after a long-awaited plan to address the disparities in healthcare for Autistic individuals was today released by the Australian Government's Department of Health, with the disclaimer that funding is yet to be secured. 

The roadmap, which was drafted in December 2024 was reviewed by Minister Rishworth and Minister Butler before reaching the Prime Minister’s desk, who declined funding under his government.

ChatGPT: NDIS and parents of autistic children

By convenor |

ChaptGPT provided the following response in relation to the NDIS's approach to parents of autistic children ...

There have been reports and discussions surrounding the National Disability Insurance Scheme (NDIS) in Australia regarding derogatory comments or insensitive behavior by some officials towards parents of autistic children. While it's important to note that not all officials engage in such behavior, there have been instances where parents have reported negative experiences. Some concerns raised by parents include:

Is generic speech therapy for autistic children evidence-based?

By bobb |

Answer: it appears not.

Recently, the NDIS was unable to provide any evidential basis for having generic speech or occupational therapy listed as a support for autistic children - see https://a4.org.au/node/2674

There are various other examples where evidence supporting generic speech therapy is missing. These include research reviews for Australian Government agencies - in particular