Sherryn Groch

As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.

It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight. 

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

Corporate Affairs, Victoria Legal Aid

 

Thank you for your report <http://www.legalaid.vic.gov.au/sites/www.legalaid.vic.gov.au/files/vla-care-not-custody-report.pdf> , Care not Custody which includes an interest in and advocacy for vulnerable autistic children. And congratulations on the recent publicity <http://a4.org.au/node/1390>  for the issue.

 

A group of autistic women advocates prepared a submission for the United Nation's Special Rapporteur on Violence against Women. 

Henry Belot

The Federal Government has announced an independent review of the National Disability Insurance Scheme (NDIS) to examine overall costs, value for money and its long-term sustainability.

Treasurer Scott Morrison announced the Productivity Commission review on Friday afternoon with a position paper to be released in May, followed by a report in September.

Media Release

The response from Disability Minister Christian Porter MP’s office on increasing autism diagnoses is very disappointing according to Bob Buckley, A4 Convenor. Autism Aspergers Advocacy Australia or A4 is the national grass-roots advocacy group for autism spectrum disorder.

A4 editor: The following is not specifically about autism or disability ... it is here to help/inform any autistic adults who are having issues with Centrelink's cruel new system for scamming/fabricating debts from the most vulnerable.

Sally Whyte, Journalist

A4 provided the submission below in response to the DSS Discussion Paper (see https://engage.dss.gov.au/disability-em…). A4's submission starts out saying:

The opening sentence of the Minister’s Foreword to the discussion paper says:

Applied behavioral analysis is the most widely used therapy for autism, but some people say its drills and routines are cruel, and its aims misguided.

BY ELIZABETH DEVITA-RAEBURN

When Lisa Quinones-Fontanez’s son Norrin was diagnosed with autism at age 2, she and her husband did what most parents in their position do — they scrambled to form a plan to help their child.