A Canberra teenager with one failing kidney is facing a death sentence without dialysis and an eventual transplant but according to his mother, doctors at Canberra Hospital have told him he can’t be treated because of his autism.
Palmerston mother and full-time carer Leanne Browning says she was told on Christmas Eve that her 17-year-old son Caleb, who also has ADHD, only had a few months to live but did not fit the criteria for dialysis because he could not sit still enough and sedation would further damage his kidney.
Jordan Baker & Nigel Gladstone
Special needs classes in public schools are heavily concentrated in the most disadvantaged parts of Sydney, with 92 in the Blacktown local government area alone but none in Hunters Hill, Lane Cove or Mosman.
In the Liverpool and Campbelltown council areas there is an average of just over one class for students with disabilities per school, an analysis of NSW Department of Education figures by the Herald shows.
As Helping Children with Autism (HCWA) celebrates its 10th anniversary, providers and families are looking to the National Disability Insurance Scheme (NDIS) to continue the important work started by the program.
HCWA was introduced by the Australian Government in 2008 to help families access crucial early intervention services for children with Autism Spectrum Disorder (ASD).
The Liberal National Government will provide nearly $4 million in funding for new research into autism, helping find better diagnosis, treatment and care for those affected by the developmental condition.
The research funding from the National Health and Medical Research Council has been allocated for five projects across Queensland, Victoria and New South Wales.
Off-label prescribing of psychotropic drugs to adults on the autism spectrum could be exposing individuals to harm.
Adults on the autism spectrum are being prescribed mental health drugs in instances where there is limited supporting evidence to do so.
This was one of the findings of a UNSW-led study that looked at the use of psychotropic medication – or medication for mental health problems – by adults on the autism spectrum.
Disability advocates say they will be closely watching an independent assessments trial to ensure it achieves its stated aims of fairer access and planning decisions for National Disability Insurance Scheme participants, rather than reducing access to the scheme.
The National Disability Insurance Agency last week announced an independent assessment pilot aimed at improving the consistency, accuracy and reliability of NDIA decision-making.
The young man was kept in a garage thick with blowflies and the smell of faeces, feeding on meals left at an outdoor table where the dog also helped itself.
Neighbours observed him wandering the backyard for hours in a state of distress, slapping his face, biting himself, crying and banging on the back door to his family home. He had autism and an intellectual disability.
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