News/Announcements

Dismay at report on locking up children with disabilities

Lauren Martyn-Jones

THE mother of a child who was locked in a cell-like room for time-outs at a Hervey Bay primary school wants a State Government review to ban the practice totally.

The incident involving her autistic son Tate Smith triggered a State Government review and the appointment of a department "watchdog" to oversee the education of children with disabilities in Queensland.

The review has found that the restrictive practice experienced by Tate should be used as a measure of last resort to prevent harm to staff and students.

But Tate's mum Kelly-Ann Brooks said she was disappointed the review did not go further and call for an all-out prohibition on the use of restrictive practices on children with special needs.

Inquiry into the provision of services under the NDIS for people with psychosocial disabilities related to a mental health condition

A4's submission

A4 made a submission to the inquiry by the Joint Standing Committee on the NDIS into the provision of services under the NDIS for people with psychosocial disabilities related to a mental health condition

Assistant Minister for Immigration Alex Hawke intervenes to stop deportation of Sydney girl with autism

Inga Ting

 A teenage girl with autism facing deportation after eight years living in Australia has been granted permanent residency, following an eleventh-hour intervention by the Assistant Immigration Minister.

Sumaya Bhuiyan, 16, had been ordered to book her flight out of the country by Friday, February 24. Her family's application for permanent residency was rejected in 2013 after immigration health checks found Sumaya had a "moderate developmental delay" that would result in significant cost to Australian taxpayers, her mother Nasrin Haque told Fairfax Media on Thursday.

There’s lots about autism to be angry about, but funding models isn’t one of them

Holly Hughes

Note: given the strong pro-government stance in this article, Ms Hughes should have also disclosed her affiliation with the Liberal Party - see http://www.afr.com/brand/rear-window/election-2016-connie-fierravantiwel...

The National Disability Insurance Scheme is a game changer for people with a disability and everyone who loves and supports them. Families will finally have effective choice and control over who provides the services that they actually want and need.

Living with Spiderboy: Raising a child with ASD

When you’re a parent of a child with high-functioning autism, you learn to make allowances. But should borderline arachnophobe Ian Rose allow his son a pet spider for his birthday?

Ian Rose

Spiders. Why did it have to be spiders? The latest in a series of obsessive enthusiasms that have characterised our son’s early childhood, the spider is not a beast to which I’ve ever warmed.

If you don’t vaccinate your kids, Australia won’t pay for your child care

Amanda Erickson 

In Australia, there used to be widespread agreement that vaccinating children against fatal diseases was a good thing. Kids got shots, and the rate of childhood diseases plummeted.

But then things changed. In 1994, a group calling itself the Australian Vaccination Network launched a campaign claiming the risks of vaccines (which are essentially nonexistent). Its core mission: “to ensure that vaccinations are never made compulsory for Australian children." (Years later, the group was forced to change its name to the Australian Vaccination-Skeptics Network, or else be de-registered.) The group seized on a fraudulent, wholly discredited paper linking the MMR vaccine to autism.

Disability inclusion practices failing some families, says experienced WA educator

By Nicolas Perpitch

The Western Australian education system is failing to meet the needs of some highly disabled children because of inflexibility and a lack of expertise, according to an experienced educator.

Stephen Breen, the immediate past-president of the WA Primary Principals Association and a teacher and principal for 42 years, has been joined by disability advocates in criticism of the Education Department's inclusion practices.

Autistic academics give their thoughts on university life

Around 3% of students in higher education are autistic and universities are working hard to listen, understand and meet their needs. But the fact that autistic students can become autistic academics appears to have gone unnoticed.

Autism research is still dominated by approaches which treat it as a “disorder” or a “deficit”. Research funding prioritises this “basic science” over work which approaches autism as a “natural human variation” or just difference.

When a family member has a disability, what happens when the carer doesn't come?

The disability support industry is facing a dramatic shortage of trained carers, leaving thousands of families without regular care and much needed respite.

Lateline spent a day with Fiona Hough and her five-year-old son Charlie, who has autism, to see how they cope when the carer doesn't come.

"Not having that person there, it's amazing how quickly you can get down into really dark territory," Ms Hough said.

Disability agencies say they are struggling to recruit staff and keep up with the demand from families in need.

Tasmania: DHHS Provides A Free Evidence-Based Platform with Best-Practice Intervention Tools

Today, 1 in 63 children will be diagnosed with an Autism Spectrum Disorder (according to A4 2015).
For the past two years, the Tasmanian Department of Health and Human Services has been supporting schools and families in behaviour management and skill development with the world’s leading evidence-based platform Rethink.

Rethink provides a free on-line solution that helps teachers:

  • Develop custom learning curriculum (aligned to Australian Curriculum)

  • Monitor and track student progress

Autism Prevalence Up, But Not Spiking

Typo in Pediatrics inflates increase in autism

by F. Perry Wilson MD, MSCE

The paper contains a jarring statement: the rate of autism spectrum disorder rose by "almost 400%" from 2007 to 2011, but the statement is wrong.

The paper in question is published online today by Pediatrics, but a close review of the data revealed that the number was drastically inflated.

'We almost lost him': Canberrans with special needs turned away from hospital

Sherryn Groch

As new research reveals Australians with intellectual disabilities are dying avoidable deaths, two Canberra carers share their own 'horror' stories.

It started with just a runny nose and a routine trip to the doctor. Then Gungahlin mother Therese Bean noticed her son was losing weight. 

Nicholas, 23, who has non-verbal autism, began spending all day lying on the couch and struggled to keep food down. A lump the "size of a 50 cent coin" appeared under his chin. Eventually, it became difficult for him to breathe.

What happens to children who move off the autism spectrum? Clinical follow-up study.

Abstract

Background

There is controversial information on outcome of school age individuals who lose the diagnosis of autism and achieve “optimal outcome” (OO). The present study assessed the autism symptoms and other psychiatric disorders in a group of children with a past history of autism.

Urgent need for cause of death reporting system for Australians with intellectual disability

DAN WHEELAHAN

The deaths of more than 700 Australian adults with an intellectual disability could have been avoided with more appropriate health care and monitoring, a UNSW study has revealed.

Research by UNSW has found that while Down syndrome itself doesn’t cause death, it is still coded that way in a flawed classification system. Photo: Shutterstock.

A total of 732 Australian adults with an intellectual disability died in NSW over six years, many from causes or conditions that could have been avoided with more appropriate health care and monitoring.

Clue on why boys more prone to autism

Sarah Wiedersehn

Scientists have found that brains with a "typically male" structure, even among women, are linked to a higher risk of autism.

A German study of high-functioning adults with autism spectrum disorder (ASD), also known as Asperger syndrome, found females with more typical male brain anatomy were about three times more likely to have ASD.

Earlier intervention, more teacher training needed for inclusive education, expert says

Between five and 10 per cent of students have learning disabilities, Young says

Ryan Cooke

Teachers in Newfoundland and Labrador need more preparatory time and more training for inclusive education to work, says an expert in the field.

Gabrielle Young, a Memorial University assistant professor with a focus on special education, told CBC the province's inclusion model is rooted in good intentions, but needs better implementation.

What “Counts” for Autism Has Been Dropping: Is That Good?

David Rettew M.D.

New research confirms a drop in severity for autism diagnoses

The steady increase over the past several decades in the percentage of children who meet criteria for an autistic spectrum disorder has been widely reported.  From rates of around 1 in 5000 children in 1975, the latest estimates from the Center for Disease Control are 1 in 68. This rise has triggered alarm bells in many circles as people search for and speculate about the reasons behind the increase, including the thoroughly discredited hypothesis regarding vaccines. 

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