Georgia and the NDIS

Jason Clare MP portrait - official photograph

The Hon Jason Clare MP
Member for Blaxland
Speech: 12 Feb 2018

Tonight I want to talk about a beautiful little girl who lives in my electorate named Georgia.

Georgia is 9 and she has multiple disabilities.  She has autism, epilepsy and profound global development delay.

Georgia can’t dress herself, or brush her teeth or comb her hair.  She can’t shower on her own.

She has to wear a nappy 24 hours a day.  

She has to wear a onesie - otherwise she will put her hands in her nappy and smear faeces around the house.

NDIS transition could see children with severe disabilities withdrawn from out-of-home care

mother holds young daughter - they both look sad

There is a related petition you can sign:

Jade Macmillan

Parents of children with severe disabilities in NSW are "terrified" they could lose access to around-the-clock care due to a funding stoush between the State Government and the National Disability Insurance Scheme (NDIS).

About 1,000 children with disabilities access voluntary out-of-home care across the state, including overnight respite services and residential placements.

Police who shot teen made 'good choices' to protect themselves, Commissioner says

thoughtful teenager boy's face

Talissa Siganto

Queensland's Police Commissioner says he backs the officers who shot a teenager in the chest after a domestic dispute on Wednesday afternoon.

Jai Hunt, 16, was allegedly threatening police officers with a knife when they arrived at his home in Springfield, south-west of Brisbane.

The Police Union maintains officers had no option but to shoot Jai.

Kids incarcerated in Australia have 'alarming' levels of neurodevelopmental impairment

An alarming world-first study into the cognitive abilities of young people in detention in Australia has found evidence of severe neurodevelopmental impairment in almost every child assessed.

Researchers from the Telethon Kids Institute assessed 99 children aged 10 to 17 incarcerated at the Banksia Hill Detention Centre in Western Australia. The findings uncovered an unprecedented prevalence of Fetal Alcohol Spectrum Disorder (FASD) and severe neurodevelopmental impairment.

WA: Albany to trial autism alert card

Saskia Adysti

Albany will be the first town in Australia to trial an autism alert card.

The card will help authorities and emergency service providers to better understand people with autistic behaviour, as most patients find it difficult to communicate with others about their disability, particularly during an emergency.

The card will also have two emergency contact numbers of the card holder.

Great Southern Police District Superintendent Dominic Wood said the card would provide better security to those with autism.

Why there need to be more autistic characters in children’s books

3 children sitting reading books

The children’s writer Michael Morpurgo has written a new novel inspired by his autistic grandson, which is set to be published later this year. Flamingo Boy is set in the Camargue in the south of France during World War II and features a boy who “sees the world differently”.

Morpurgo explained how it didn’t occur to him to write a book about autism until his grandson was born, which isn’t totally surprising – as autistic characters in books are few and far between.

Fiction plays a significant role in shaping how people understand and respond to autism. And in this way, books are often used by both schools and parents to help children and young people understand more about autism.

WA: Why parents of children with autism are opting for homeschooling

Charlotte and Joseph Dainton

Sarah Collard

Eleven-year-old Charlotte Dainton and her nine-year-old brother Joseph are obsessed with iPads, miniature golf and cartwheels.

They also have speech and developmental problems stemming from autism and both struggled in mainstream education.

Their mother, Sonya Dainton, is now among a growing number of parents who are choosing to homeschool their children, because they say the education system is failing them and not providing the support their children need.

New hub to support students with autism into employment

Students with autism, anxiety, depression, post-traumatic stress disorder and other neurodiverse needs will soon have greater access to employment opportunities through a new Queensland hub.

The University of Queensland and DXC Technology have partnered to form the Queensland Neurodiversity Hub, which will help students gain work experience with DXC and its partnership organisations.

Bundaberg: AEIOU open day focuses on autism information

FAMILIES and carers of children with autism have the opportunity to learn first-hand how intensive early intervention develops essential life skills and creates lifelong opportunities.

Local specialist autism early intervention provider AEIOU Bundaberg will open its doors to interested families today, to provide information and insight on how the AEIOU program develops functional communication, behaviour, social and independence skills and gives children and their families the best chance to reach their full potential.

'A life-or-death situation': Mum of runaway autistic teen praises good Samaritans for quick action

The mother of a severely autistic teenager who ran onto the road in front of oncoming traffic in Melbourne's west has praised the good Samaritans who stopped and saved her son from the "life-and-death situation".

One of the three men who went to Darcy Mills' aid had his new ute stolen as he was chasing the 14-year-old along busy Rosamund Road in Maidstone on Tuesday.

Alternative health practitioner Elvira Brunt now ‘treating autism’ with belly button massage

Tory Shepherd

A HEALTH practitioner at a popular Adelaide medical clinic is treating children’s autism with belly button massage.

Elvira Brunt, from St Morris’s popular Fravira Clinic, has a long history of charging vulnerable people for false cures.

She has been criticised for giving people false hope and dangerous advice.

The Advertiser has revealed in the past that she has been accused of telling parents to deny their children treatment or even painkillers, in one case suggesting a girl with leukaemia eat KFC instead.

South Barwon MP Andrew Katos calls for dedicated autism school at Oberon site

MP Andrew Katos says the Oberon school site should be retained for education purposes.

Harrison Tippet

A LIBERAL MP has called for a soon-to-be-surplus school site in Belmont to be transformed into Geelong’s first dedicated Autism Spectrum Disorder school.

South Barwon MP Andrew Katos said the site of Oberon High School in Belmont should be retained by the Government if the school is moved to Armstrong Creek as planned — not sold off and subdivided.

“The government shouldn’t be selling off the site, they should be retaining is for education purposes,” the state Liberal MP said.

Children diagnosed with autism early more likely to attend mainstream schools

Lucie van den Berg

MOST Australian children are not diagnosed with ­autism until they are four, but new evidence highlights the importance of an early ­diagnosis.

Findings from two new studies reveal children diagnosed with the neurodevelopmental condition when they were two years old were more likely to attend mainstream primary schools.

They also had better ­cognitive and language skills when they were seven to nine years old than those diagnosed later.

Research to give new insights into autism

boy facing )not looking into) camera

Inspired by his son, Flinders optometry researcher Dr Paul Constable has commenced working with Yale Child Study Center and Great Ormond Street Children’s Hospital to research links between autism and the eye’s response to light.

Supported by a $US50,000 donation from the Alan B. Slifka Foundation, the research will look into the incidence of reduced light adapted electro-retinogram (ERG) b-wave amplitude in children diagnosed with Autism Spectrum Disorder.

2017 was a ‘Dismal’ Year for Human Rights in Australia

Luke Michael

2017 was a “dismal” year for human rights in Australia, according to a report card which found the country significantly lagged behind in areas including disability rights, Indigenous rights and the rights of refugees and people seeking asylum.

The 2017 Human Rights Report Card from Australian Lawyers for Human Rights (ALHR) graded Australia in a number of areas and also graded each state and territory, with mixed results.

Mother tells Trudeau autism care is a 'human rights issue'

Carly Sutherland's son, Callum, suffers from violently aggressive fits. She asked Prime Minister Justin Trudeau about his government's stance on setting up a national autism strategy during his town hall meeting in Lower Sackville, N.S., Tuesday evening. (Pat Callaghan/CBC)

Prime minister holds town hall meeting with residents in Lower Sackville, N.S.

A Nova Scotia activist and mother of a nine-year-old boy with severe autism asked Prime Minister Justin Trudeau about his government's stance on setting up a national autism strategy during his town hall meeting in Lower Sackville, N.S., Tuesday evening.


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