'My son being diagnosed with autism was my worst nightmare'

By bobb |

Renay knew exactly what autism was by the time she had her first child, Anthony, because she'd been living with it most of her life.

"My brother was diagnosed with autism when he was two and I was 11," she told 9Honey. "It was always my worst fear that one of my children would be born with autism because I saw what happened to my brother."

The 36-year-old became very involved in his care, but still failed to recognise the disorder in her own son Anthony, now two-and-a-half.

NDIS transition could see children with severe disabilities withdrawn from out-of-home care

By bobb |

There is a related Change.org petition you can sign: https://www.change.org/p/pru-goward-don-t-let-the-ndis-leave-kids-homel…

Jade Macmillan

Parents of children with severe disabilities in NSW are "terrified" they could lose access to around-the-clock care due to a funding stoush between the State Government and the National Disability Insurance Scheme (NDIS).

About 1,000 children with disabilities access voluntary out-of-home care across the state, including overnight respite services and residential placements.

Why a Wollongong mum would like more people like her to have input in more projects in public spaces

By bobb |

Greg Ellis

A Wollongong mother of two children on the Autism spectrum who has Asperger’s herself is calling for more opportunities for people like her to have input in community initiatives.

After being invited to be part of the new committee to make Corrimal the first "Autism Friendly Community" local resident Cassandra Kavanagh wants more people like her to have involvement in more public spaces becoming autism friendly.

Warrawong mother’s angst after government denies autistic boy pension

By bobb |

Agron Latifi

Warrawong mother Louise Jane Maffullo is at her wits end.

Her year long efforts to secure a Disability Support Pension (DSP) for her 17-year-old autistic son Bryce Maffullo have proved fruitless.

And this has frustrated Mrs Maffullo, who can’t fathom how Bryce is eligible for special needs assistance at Warrawong High School but the Department of Social Services won’t offer similar help.

Carer and 8yo boy killed after being hit by truck on Pacific Motorway near Newcastle

By bobb |

A 27-year-old woman and an eight-year-old boy she was a carer for have died after being hit by a truck on the Pacific Motorway near Newcastle in New South Wales.

Police said the woman's car had stopped in a breakdown bay on the M1 at Cameron Park, near George Booth Drive, on Sunday evening.

"The driver got out of the vehicle and opened the side door," Acting Assistant Commissioner Stuart Smith said.

"At that stage we believe an eight-year-old child has entered the roadway, followed by a 27-year-old carer.

Cessnock's Strive for Autism celebrates tenth anniversary

By bobb |

Krystal Sellars

Ten years ago this month, a support group for families of people with autism spectrum disorders held its first meeting in Cessnock.

Since then, Strive for Autism has helped to provide support for such families, and raise much-needed awareness of the lifelong developmental condition that can affect communication, sensory perception, social interactions and behaviour.

Strive for Autism president Maxine Baird said the group’s meetings provide information and support, and a forum for families with questions and stories to share.

Lutz-Manrique children's special needs school providing more support for parents one year on

By bobb |

A year on from the murder-suicide of the Lutz-Manrique family in Sydney's north, the children's special needs school is still grappling with the tragic deaths and has formed special support groups for parents.

It was October last year that police made the gruesome discovery of the Lutz-Manrique family, in an elaborate murder suicide in the leafy Sydney suburb of Davidson.