Should this neighbour have complained about an autistic boy?

By bobb |

Madeleine Ryan

Expressing our emotional needs can be a tricky business. I’m autistic, and I know that it can take a lot of work. And, as Brisbane mother and full-time carer Magenta Quinn learned late last month, a neighbour demanding peace and quiet can be harder to help than a child on the autism spectrum.

Ms Quinn’s neighbour, who "wished to remain anonymous to avoid any conflict", threatened to call the council if something wasn't done about her autistic son, who hums, moans and yelps to soothe himself.

letter: NDIA, autism stakeholders and early intervention

By convenor |

Mr Robert De Luca

CEO of the National Disability Insurance Agency

Dear Mr De Luca

Autism Aspergers Advocacy Australia, known as A4, is the national grass-roots advocacy group representing autistic people and others living with autism spectrum disorder (ASD). A4 and others in the ASD community have tried to engage with the National Disability Insurance Scheme (NDIS) from the outset. But there has been very little progress.

Correspondence with NDIS

By convenor |
Subject: Letter from Chris Faulkner [SEC=UNCLASSIFIED] NDIS logo
Date: Wed, 28 Feb 2018 03:29:29 +0000
From: FAULKNER, Chris
To: Bob Buckley (A4 Convenor)

Good afternoon,

Please find attached letter following on from our meeting on 30/01/2018.

The battle for benefits: people with disabilities fight back against broken system

By convenor |

Jeremy Poxon, Media Officer for the Unemployed Australian Worker's Union

Record numbers of Disability Support Pension applicants are having their claims rejected, often against the explicit advice of doctors. With nothing left to lose, some are choosing to fight.

After two years of failed applications for the Disability Support Pension — as well as numerous appeals — Quang Huynh, a 30-year-old Dandenong man, decided he’d had enough.

Georgia and the NDIS

By bobb |

The Hon Jason Clare MP

Member for Blaxland

Speech: 12 Feb 2018

Tonight I want to talk about a beautiful little girl who lives in my electorate named Georgia.

Georgia is 9 and she has multiple disabilities.  She has autism, epilepsy and profound global development delay.

Georgia can’t dress herself, or brush her teeth or comb her hair.  She can’t shower on her own.

She has to wear a nappy 24 hours a day.  

She has to wear a onesie - otherwise she will put her hands in her nappy and smear faeces around the house.

Kids incarcerated in Australia have 'alarming' levels of neurodevelopmental impairment

By bobb |

An alarming world-first study into the cognitive abilities of young people in detention in Australia has found evidence of severe neurodevelopmental impairment in almost every child assessed.

Researchers from the Telethon Kids Institute assessed 99 children aged 10 to 17 incarcerated at the Banksia Hill Detention Centre in Western Australia. The findings uncovered an unprecedented prevalence of Fetal Alcohol Spectrum Disorder (FASD) and severe neurodevelopmental impairment.

MC18-000018 - NDIA meeting request

By convenor |

On 2/2/2018, A4 received a letter dated 25/1/2018 (link to PDF below) from an NDIA official asking to meet with A4.

The meeting was held on 30/1/2018 (before A4 received the written request - it was organised by phone and email).

Note that the letter says the purpose of the meeting was "to discuss your [A4's] concerns".

Guide to NDIS decision-making

By bobb |

When a decision can be made by, with, or for an adult with significant cognitive disability.

Published January 2018.

The aim of this guide is to outline when decision-making support, advocacy and substitute decision-making will be needed for potential and current NDIS participants who have significant cognitive disability. It does this in the context of each possible decision-making stage within the NDIS participant pathway.