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Reconsider your perception of autism, pleads mother of two autistic children

By bobb |

I am a 43-year-old autistic wife and mother to two beautiful autistic children. Our family is what I like to describe as ‘neurodivergent’: our brain and thought process is different to others based on our genetic make up. So it was with shock and disbelief when I learned that four people from the one family had died on Monday 17 October in Davidson, NSW. 

Autism Speaks No Longer Seeking Cure

By bobb |

For the first time, the nation’s largest autism advocacy organization has revamped its agenda and one notable objective is no more.

Autism Speaks’ board of directors voted in late September to modify the organization’s mission statement, marking the first such change since the nonprofit was established in 2005.

The new iteration is shorter and strikes a markedly different tone. Gone are terms like “struggle,” “hardship” and “crisis.” Also absent is any mention of seeking a cure for the developmental disorder.

Stress, despair in care of children with autism

By bobb |

They say that the mother of a child with autism experiences a level of stress comparable to that of a combat soldier.

Grace Fava certainly did.

Her two boys, now aged 15 and 13, were diagnosed with autism at the ages of three and two respectively and the family plunged into near-constant crisis, including a three-year period of faeces smearing and several terrifying occasions when they escaped naked from the windows.

"In the early days it was horrendous," Ms Fava said.

NFPs Demand ACT NDIS Shutdown Be Reversed

By bobb |

Disability advocacy organisations across the country have united to call on the state and federal governments to work together to reverse the “shutdown” of the National Disability Insurance Scheme in the ACT.

The move comes after it emerged more than 1,000 people with a disability in the ACT are at risk of missing out on the scheme after the National Disability Insurance Agency stated there would be no new participants in the territory.