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'Profoundly irresponsible': How the NDIS is failing the autistic

By bobb |

Madeleine Ryan

I am autistic and much of the terminology that’s used to describe autism often feels confusing, and disempowering.

Although the subject is frequently in the news and being talked about the diagnostics coined by doctors, professors and scientists in relation to it are often disconnected from my life, and the lives of autistic adults and children. All the puzzling terms, labels and categories can make it harder for us to receive help when we need it and harder for the rest of the world to understand us.

RACGP: NDIS autism disconnect: Is the driver need or money?

By bobb |

When advocating for people with a disability in Australia, one becomes indurated to the disappointments provided by the Government. We were treated to another example this month, writes Dr James Best.

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Dr Best believes if children with Level 2 ASD are removed from the NDIS automatic qualification list, already strained families will face more red tape before they can access the scheme.

On spectrum of needs, NDIS should axe ASD

By bobb |

Warning: it is best to not read the following. This article contains factual errors, prejudice and poor journalism. It is on this website as part of the history of autism in Australian media ... and to show the level of profound ignorance about ASD in much of the Australian community. For example, the claim below that "the vast majority are on low levels of the spectrum" is contrary to available data published by the Australian Bureau of Statistics showing most people diagnosed with ASD have sever or profound disability. She's a serial offender: see http://a4.org.au/node/1218


In 2013 I wrote an Inquirer piece asking: What are the practical economic restraints on disability services in a society with an ever expanding notion of disability? Where do we draw the line? Who will and who won’t be eligible for assistance under the National Disability Insurance Scheme?

Action Must Be Taken to Stop Bullying of Students with Disability

By bobb |

Stephanie Gotlib

Unfortunately, bullying of students with disability, including abuse and violence at school is not a new, unusual or unknown experience, writes Children and Young People with Disability Australia CEO Stephanie Gotlib.

Many in our community were rightly sickened by the footage which emerged recently of a young boy with disability being violently assaulted by peers outside a secondary school in Melbourne.

Defining moment for National Disability ­Insurance Scheme

By bobb |

Rick Morton

Rob De Luca isn’t ready to speak with you yet.

The young, newly installed chief executive in charge of the $22 billion National Disability ­Insurance Scheme was adamant he didn’t want a public email when he took over the reins in August last year.

He uses a made-up first name, keeping the address off the books because he doesn’t want ­direct emails from “normal mums and dads, agency staff and participants”, according to one disgruntled staff member.

NDIS's 'very cold' attitude leaves parents of disabled boys outraged

By bobb |

The parents of two boys with disabilities say they were shocked with how the NDIS responded to their request for funding for basic equipment.

Hobart couple Michael and Jasna Baric are full-time carers for their sons Joshua and Lucas, who have Duchenne Muscular Dystrophy.

The condition means the boys' muscles are progressively degenerating and becoming weaker.

"The disease is degenerative; it won't get any better," Ms Baric said.

'They'll physically lose their ability to walk and use their body.