THOUSANDS of children diagnosed with autism could lose access to thousands of dollars in federal support and other subsidies under changes planned for the manual of medical disorders used to guide psychiatrists worldwide.

Autism patient advocates say the first Australian research on the likely impact of the changes suggests 23 per cent of those who qualify as having a form of autism would no longer do so.

The Olga Tennison Autism Research Centre, La Trobe University, has developed an online resource for ASD students, parents, and tertiary staff. The website development was part of a larger project which aims to support tertiary students diagnosed with ASD.

Here’s the link: http://www.latrobe.edu.au/otarc/info/support

Briefly, each section contains the following information:
• Students: transition and orientation, disclosure, what to expect at university and TAFE, learning at university and TAFE.

Hamish Fitzsimmons

A leading expert on autism is warning of the long-term costs if funds to assist the education of children with autism spectrum disorder continue to be cut.

Researchers say autistic children who are bullied at school often do not receive any help until the abuse becomes physical.

A study of 50 autistic primary and secondary school students by Bond University on Queensland's Gold Coast has found 80 per cent of them have experienced bullying without their teachers knowing.

Dr Vicki Bitsika from the Centre of Autism Spectrum Disorders says it often takes a long time for a child with autism to realise they are being mistreated.

Parents are over-reporting anxiety in their children with autism, while bullying of children with autism at school is going unreported until it escalates, according to studies currently underway at Bond University’s Centre for Autism Spectrum Disorders.

Preliminary findings of the first study indicate that parents and care givers often mistake repetitive behaviours such as rocking and hand flapping as an indication that their children are experiencing high levels of anxiety.

The autism/ASD advocacy group, Speaking Out for Autism Spectrum Disorders in the Australian Capital Territory (SOfASD ACT) wrote to ACT political candidates asking about their policies and plans for people affected by autism. There is an election in the ACT in October and the group feels the ASD community in the ACT need to know what prospective governments plan to do to improve outcomes for people with ASD and their associates.

SOfASD asked specific questions about policy and plans for:

• diagnosis
• early intervention
• school age: education and other needs

Sandy Guy
July 2, 2012

Opinion

LAST Tuesday I received a phone call from a former Yooralla regional manager. She said police were going to the home of my 31-year-old son, who is severely disabled, to interview him and the other five residents of the house, which is run by Yooralla.

Stunned, I asked her what was going on. She replied that a Yooralla casual carer was in police custody charged with alleged abuse. I asked her when the police were going to my son's house. She said they were already there.

June 11, 2012 in Autism spectrum disorders

Children with Autism Spectrum Disorders (ASD) require an array of specialized health care services. With these services come higher costs for parents and insurance providers. University of Missouri researchers compared costs and types of services for children with ASD to costs and services for children with other conditions like asthma or diabetes. The researchers found children with ASD paid more for health care than children with other conditions. In addition, children with ASD used more services yet had less access to specialized care.

Farah Farouque
June 25, 2012

The UN report noted that indigenous children were significantly overrepresented in the criminal justice and child protection systems.

The UN report noted that indigenous children were significantly overrepresented in the criminal justice and child protection systems. Photo: Angela Wylie

A UNITED Nations committee has pulled up Australia on the status of its children, citing concerns from ''serious and widespread'' racial discrimination faced by indigenous youth to inadequate numbers of newborns being breastfed by their mothers.