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Long-awaited databases reveal breadth of genetic variation

By bobb |

BY KATE YANDELL

Two massive efforts to sequence the DNA of more than 11,000 people are finally complete. Together, they provide the most detailed picture yet of genetic variation across the general population. They also give researchers a starting point for finding genetic variants tied to a variety of conditions, including autism.

Federal Government warned of cost blowout in National Disability Insurance Scheme rollout

By bobb |

By political reporter Dan Conifer

The Federal Government is being warned about potential cost blowouts in the $22 billion National Disability Insurance Scheme (NDIS).

The agency overseeing the NDIS said factors including the increasing prevalence of autism, workforce and supply shortages, and states shifting health costs could cause overruns.

meeting request to Disability Minister - 5/11/2015

By convenor |

Dear The Hon. Christian Porter MP

Recent media reports mention the increasing number of people being diagnosed with autism spectrum disorder and the possible impact on the NDIS. Apparently, more people are diagnosed with autism than the NDIA expected … especially in South Australia.

There are a number of issues relating to autism that we would like to raise with you. These include:

  1. autism and the NDIS … particularly increasing numbers of diagnoses and the NDIA's minimal consultation with the autism community;

CEDAW: autistic women and mothers

By bobb |

Presentation by Monique Blakemore to CEDAW, United Nations 30th October 2015 

Autistic women are a marginalised sector of the worlds largest minority group, the disabled community. There is an estimated 51,870,000 autistic women worldwide, a similar population to England.

Autistic women are subjected to systemic disadvantage in most areas of their lives. Autistic women experience exclusion socially, in education, in their personal lives, in the judicial system and in access to healthcare. Autistic leadership, exemplified by organizations such as Autism Women Matter, the Scottish Women’s Autism Network (SWAN) and Alliance Autiste, is necessary to challenge stigma and discrimination. 

Real, effective, and meaningful participation of autistic people, regardless of gender, is encapsulated in the phrase ‘nothing about us without us’ and is the aim of the autistic rights movement. Representation of autistic people by groups and individuals is frequently unfunded and unsupported. Unfortunately, ‘tokenism’, which is the illusion of consultation, is over-representative of the autistic advocacy experience. Autistic voices can be crowded out by those of professionals and parent caregivers that love and support us, but may see autism through their own experience. 

Perth judge overturns ruling revoking bail of man with Asperger's syndrome

By bobb |

A Supreme Court judge in Perth has overturned a decision to revoke the bail of a man with a mental disability, who a magistrate claimed was "playing games" by failing to "engage" during a court appearance.

After an urgent hearing, Justice Stephen Hall ruled Nima Afrasiabi, who has Asperger's syndrome and symptoms consistent with bipolar disorder, should not have been remanded in custody by the magistrate when he answered his bail and appeared in the Intellectual Disability Diversion Court on three damage charges.

Oxytocin spray improves social skills in some children with autism, world-first study shows

By bobb |

A world-first study has found a hormone commonly used to induce labour in pregnant women, oxytocin, has significant benefits for some children with autism.

One in 68 Australian children is diagnosed with the disorder, which affects their communication skills and makes it difficult for them to interact socially.

"Often people with autism are incredibly bright and have lots of potential in so many ways," Associate Professor Adam Guastella, from the University of Sydney, said.

"But they often miss the important cues that guide social behaviour."

School puts autistic boy in ‘cell-like’ room

By bobb |

AN AUTISTIC student was locked inside a small room with the windows boarded up at his Hervey Bay primary school because his teacher said he needed “time out”.

Tate Smith, 9, was locked in the room unsupervised up to 20 times in the last year, left with just a thin mattress on the floor and a pillow.

Mother Kelly-Ann Brooks said her son, who is in Year 3 at Kawungan State School, had been left distraught by the ordeal, describing the 2x2m room as “cell-like”.

Behavioural needs of autistic Australians must be met

By bobb |

A range of initiatives are needed to address autism in Australia, the cost of which to the budget has been put at at least $20 billion a year.

The recent case of an autistic child being sent to a purpose-built cage in a classroom caused international outrage, but teachers are ill-prepared to access professional support when a student needs it, Bob Buckley writes.