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Jeanette Purkis on autism and empowerment

By convenor |

When Jeanette Purkis was first diagnosed with autism two decades ago, the condition was stigmatised, and poorly understood. From prison to parenthood, she shares her story of surviving, thriving, and learning to accept herself.

As a child, I was very odd. Everyone would say to my mum, 'What's she doing now?' because I was a very energetic child and I was quite naughty, very determined.

When I went to high school, things got very bad. People hated me. People really bullied me and I was the least popular child.

5 Lessons My Autistic Son Taught Me About Fatherhood

By convenor |

Ron Fournier is the author of the upcoming Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent’s Expectations.

"Love your child for who he is, not who you want him to be”

Moments after my son was diagnosed with autism, my wife confronted me in the doctor’s parking lot. “It’s time to step up,” Lori said. Be a better father. She told me to take a series of road trips with Tyler—to bond with our 12-year-old boy and teach him to navigate a world that isn’t wired like him.

Turns out, Tyler did the teaching.

Aaron Pajich: Women charged with murder of teenager found buried in backyard appear in court

By convenor |

By Irena Ceranic

Jemma Victoria Lilley, 25, and Trudi Clare Lenon, 42, were charged after police found the body of Aaron Pajich under a freshly laid concrete slab in the backyard of their home on Broughton Way in Orelia.Two women accused of murdering an 18-year-old man in Perth's southern suburbs have appeared in court.

The Perth Magistrates Court was told Mr Pajich, who had Asperger's syndrome, was killed on June 13, the same day he was last seen at a taxi rank at the Rockingham City Shopping Centre.

Lilley and Lenon were not required to enter a plea and have been remanded to face Stirling Gardens Magistrates Court next Wednesday.

One of the accused women had studied with Mr Pajich at an educational facility in Kwinana.

One family's battle to rescue their autistic son from the pit of despair

By bobb |

By the age of six, Brandon* had been bullied so cruelly in the playground that he told his parents he wanted to die. 

His distraught parents, Travis and Samantha, battled the Education Department for years for support for their traumatised autistic son, and even submitted a complaint to the Australian Human Rights Commission. But finally, with help from the right school, his parents have turned their son's life around. 

Maitland mum calls for better support for children with disabilities in mainstream schools

By bobb |

Donna Sharpe

A Maitland mother has gone to the Human Rights Commission claiming her special needs child has been bullied and discriminated against because of a massive gap in the education system between children with and without disabilities.

The mother, Robyn, who requested we only use her first name, said her son, 13, had been the target of discrimination, excluded from school excursions and continually bullied.

NDIS rollout in Sydney: not perfect but at least it's here

By bobb |

Connie Vella had high expectations for the National Disability Insurance Scheme and what it would mean for her four-year-old daughter Hannah, who has bilateral hearing loss.

The Cranebrook woman went to her meeting with an NDIS planner earlier this year, well prepared with quotes from a range of hearing specialists and a list of the supports Hannah would require.

All up, the quotes came to $34,000 including early intervention services, speech pathology, language therapy, a school readiness program and hearing aids.

Mrs Vella was stunned when the planner returned with a package worth $12,000.

"It was a massive gap," she said. "We are supposed to be no worse off under the NDIS. We're a lot worse off. I'm a good advocate for Hannah but there are families out there who'll just accept what's on offer and that worries me for these children."

Fury as law firm boasts of 'great win' over parents of vulnerable children

By bobb |

from the United Kingdom

Baker Small apologises after series of tweets appeared to gloat at parents who failed to win funding of their children’s special needs provision

A law firm that specialises in contesting claims for children with special educational needs (SEN) has apologised after publishing a series of tweets that appeared to gloat at parents.