The controversy over autism’s most common therapy

By bobb |

Applied behavioral analysis is the most widely used therapy for autism, but some people say its drills and routines are cruel, and its aims misguided.

BY ELIZABETH DEVITA-RAEBURN

When Lisa Quinones-Fontanez’s son Norrin was diagnosed with autism at age 2, she and her husband did what most parents in their position do — they scrambled to form a plan to help their child.

Autism Speaks No Longer Seeking Cure

By bobb |

For the first time, the nation’s largest autism advocacy organization has revamped its agenda and one notable objective is no more.

Autism Speaks’ board of directors voted in late September to modify the organization’s mission statement, marking the first such change since the nonprofit was established in 2005.

The new iteration is shorter and strikes a markedly different tone. Gone are terms like “struggle,” “hardship” and “crisis.” Also absent is any mention of seeking a cure for the developmental disorder.

10-Year-Old Boy's Moving Poem Gives A Glimpse At Life With Autism

By bobb |

A class assignment turned into something more for one family after their son wrote a touching poem and gave a peek into life with autism. 

Benjamin Giroux, a 10-year-old boy who is on the spectrum, wrote a poem titled “I Am” as an assignment for his fifth grade class. His father, Sonny Giroux, explained to The Huffington Post that every line of the poem already included two words like "I am" and "I wonder" as a prompt for the students to complete. In his poem, Benjamin wrote that he is “odd” and “new” and that he feels “like a castaway.”

Best Plan For Autism Starts With Behavioral Therapy

By bobb |

Although there is no cure for autism, various interventions can help diminish the symptoms, sometimes profoundly. Since both social and communication differences are part of the diagnosis, behavioral and speech language therapy are typically the foundation of intervention. But one challenge in planning, and a stress for parents, is that no single educational plan works for all children.

5 Lessons My Autistic Son Taught Me About Fatherhood

By convenor |

Ron Fournier is the author of the upcoming Love That Boy: What Two Presidents, Eight Road Trips, and My Son Taught Me About a Parent’s Expectations.

"Love your child for who he is, not who you want him to be”

Moments after my son was diagnosed with autism, my wife confronted me in the doctor’s parking lot. “It’s time to step up,” Lori said. Be a better father. She told me to take a series of road trips with Tyler—to bond with our 12-year-old boy and teach him to navigate a world that isn’t wired like him.

Turns out, Tyler did the teaching.

Sharing Treatment Decisions in Autism May Challenge Doctors and Parents

By bobb |

CHOP Researchers Find Gaps in Knowledge, Communication about ASD Treatment Choices

Parents of young children diagnosed with autism spectrum disorder (ASD) may experience significant difficulties in discussing treatment options with the child’s pediatrician, according to new research. Among the barriers are problems with communication, physicians’ lack of knowledge about specific ASD treatments and community resources, and uncertainty about the pediatrician’s role in making treatment recommendations for a child with ASD.

Many parents in the study reported that they did not discuss the choice of any treatment options with their pediatricians, and others said their physicians provided only general recommendations or referrals. The study team suggests that tools such as decision aids and practice guidelines may help foster more effective communication between families and pediatricians.

Autism Can Be An Asset In The Workplace, Employers And Workers Find

By bobb |

As the population of people diagnosed with autism spectrum disorder keeps growing, so does the number of people with that diagnosis who aren't finding employment.

Though many young adults on the spectrum are considered high functioning, recent research shows 40 percent don't find work — a higher jobless rate than people with other developmental disabilities experience.