NDIS funding slashed when Newcastle teenager with autism and epilepsy needs the support more than ever

By bobb |

Anita Beaumont

IF Luke and Katrina Horn both worked nine-to-five jobs, they say there is “no way” they could cover the care of their 18-year-old son under his latest National Disability Insurance Scheme (NDIS) plan.

Dillon Horn, of Newcastle, has autism and epilepsy, and he is non-verbal.

Until now, Dillon has not needed “a lot” in terms of his NDIS plan because he was attending a special development school, full time.

NSW: Inquiry into the implementation of the NDIS and the provision of disability services in New South Wales

By bobb |

MEDIA RELEASE

An Upper House inquiry has been established to examine the provision of disability services in New South Wales.

The Hon. Greg Donnelly MLC, Chair of the Committee said: 'The disability sector has undergone significant reform in recent years. This inquiry is an opportunity to examine a range of issues effecting the sector. A key area of interest is the implementation of the National Disability Insurance Scheme (NDIS)'.

Boy with autism speaks first sentence after seeing Vivid’s ‘inclusive’ light show

By bobb |

Elizabeth Fortescue

If you bundle a child into a jumper and beanie for a chilly night out at Vivid Sydney, you’ll soon be treated to a stream of chatter about the sparkly blanket of magic cast over the city by the lights and projections.

But when an excited Charlie Isackson turned to his mum at Vivid and told her, “I like it”, it was the only thing he said all night. In fact, it was the only sentence Charlie has ever said in all his seven years.

Special needs group pays tribute to 11yo Sydney boy with autism killed by train after escaping from respite care

By bobb |

A disability care service provider says it is cooperating with a police investigation into the death of a young boy with severe autism who was hit and killed by a train in Sydney's south.

The 11-year-old boy died after he escaped from a respite care facility at Oatley just after 7:00pm yesterday.

His carers alerted authorities and a police search was set up involving Polair and the dog squad.

The boy's body was found at the Oatley train station two hours later.

Police confirmed on Monday morning that the child, who was non-verbal, was hit by a train.

Natalie Jones is glad to be in Inverell boosting our services in autism care

By bobb |

Natalie Jones, speech pathologist/senior clinician at Autism Australia

I’m very proud to be commencing two new education and healthcare services here in the Inverell area – the first helping individuals with autism under the name Autism Australia, and the other a general speech pathology service – about which I’ll explain further down.

Families get together to fundraise for the Walk for Autism

By bobb |

RACHEL CHAMBERLAIN

BATHURST families are half-way to their fundraising target for the Walk for Autism. 

They gathered on Sunday at the Bathurst Community Op Shop and Bicentennial Park to walk and raise money with a barbecue.

Funds were also raised on Saturday with a raffle of a gift voucher to the Kelso Hotel.

Mother Fiona Prosser has been leading the charge for the Walk for Autism in Bathurst, the cause being very close to her heart.

Community understanding of autism is growing, says Wagga mum

By bobb |

Jody Lindbeck

When Jacob Gordon was a baby, he was a noticably poor sleeper, but as many infants are not great with nighttime routines, it was perhaps not so unusual.

However, as Jacob got older, his sleep patterns did not improve and parents Jacinta and David became increasingly concerned, especially after they began to see other issues.

“Jacob never slept. He still doesn’t sleep. He’s a very, very poor sleeper,” Mrs Gordon said.

Wollongong Lighthouse turns blue on Monday April 2 to be a beacon of awareness for autism

By bobb |

The big lighthouse at Flagstaff Hill is turning blue for World Autism Awareness Day on Monday April 2.

The Wollongong lighthouse is changing colour as dusk to recognise and celebrate people on the autism spectrum and be a beacon for awareness.

Glow Blue for Autism is being organised by Care & Share for Autism. The local charity supports families and people with autism by hosting inclusive events where everyone has the opportunity to have fun and be themselves without judgement.

'My son being diagnosed with autism was my worst nightmare'

By bobb |

Renay knew exactly what autism was by the time she had her first child, Anthony, because she'd been living with it most of her life.

"My brother was diagnosed with autism when he was two and I was 11," she told 9Honey. "It was always my worst fear that one of my children would be born with autism because I saw what happened to my brother."

The 36-year-old became very involved in his care, but still failed to recognise the disorder in her own son Anthony, now two-and-a-half.