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Readers share stories of school refusal in Australia: ‘It scarred us and changed us forever’

By bobb |

With education and mental health systems under pressure, families are experiencing distress as a result of children refusing to go to school. Here are some of their stories

Guardian Australia asked readers to share their experiences of school refusal, the commonly used term for children who are so distressed by school that they are unable to attend. Data that differentiates school refusal from other types of absences is hard to obtain, but anecdotally experiences of school refusal are rising.

The I Am, Movement designs 'culturally safe' education resources for Indigenous children diagnosed with autism spectrum disorder

By bobb |

Madeleine Cross and Meredith Kirton 

When Tanika Davis's son was diagnosed with autism at just two years old, the Worimi mother was confronted with the stigma surrounding the developmental disorder, but also surprised at the lack of consideration for Slade's Indigenous culture.

Concerns 'the next national stars' are being shut out of sporting clubs due to a lack of inclusivity for athletes with autism

By bobb |

Six-year-old Ava Renwood is an aspiring athlete with big dreams of a career in sport.

Key points:

  • Special Olympics Queensland says many athletes with autism struggle to be accepted into sporting groups
  • Brisbane mum Ashleigh Brook says Australia risks potential future athletes "falling through the cracks"
  • Multi-class events are enabling children with disability to compete in more high level sporting events

But her mum Ashleigh Brook fears her options are limited by the lack of inclusivity and understanding of athletes with autism.

Autism CRC: Longitudinal Study of Australian School Leavers with Autism (SASLA)

By bobb |

Historically, the adult years have been ignored in autism research, despite that these years representing the greatest proportion of individuals’ lives. Hence, limited information and guidance exists for autistic adults, their families and those who may provide support (e.g., health services, employment services, higher education) about trajectories from late adolescence through old age.

SA makes history with new autism minister

By bobb |

Tim Dornin

South Australia's autism community will get its own state government minister in a national first and a decision hailed as a major step towards greater inclusion.

Emily Bourke has been appointed assistant minister for autism in a bid to ensure people with the neurological condition are better represented.

Premier Peter Malinauskas says he has heard from many South Australians that the time has come for a dedicated effort from government to make autism a priority. 

"That is why we have created this new role," he said on Monday.

Hannah Gadsby on her memoir, Ten Steps to Nanette, and how her autism diagnosis changed her life

By bobb |

Hannah Gadsby's memoir, Ten Steps to Nanette, opens at the scene of a fancy Hollywood garden party at the home of actress Eva Longoria.

Celebrities are queuing to talk to Gadsby, whose Netflix comedy special, Nanette, had just sucker punched the world.

But the world-famous comedian extracts herself from a conversation with celebrated singer-songwriter Janelle Monáe to examine the preternaturally green lawn underfoot.

The autism advantage - why businesses are hiring autistic people

By bobb |

When Chris Varney was in Year 2 he presented his teacher with an incredibly detailed visual chart of the royal families of Europe from the 14th to the 19th century.

“I just felt I had found a new way of seeing the last millennium. No wonder we have so many revolutions and conflict, these families were way too connected, small community, completely out of touch,” he quips during his TED talk Autism: How my unstoppable mother proved the experts wrong.

‘Fighting for her voice’: mother locked in legal battle with NDIS over daughter’s talker

By bobb |

Melanie Stephens is caught up in Administrative Appeals Tribunal case after being denied funding for a device to help Ella communicate

A Victorian mother is locked in a battle with the National Disability Insurance Agency over her daughter’s “voice”. At least that’s how Melanie Stephens describes the “talker” device her daughter Ella has been using for four years.

Ella, 11, lives with autism and the rare genetic syndrome cri du chat (5p-), which causes delayed physical development and intellectual disability. She is non-verbal.